beta thalasemia and sickle cell may be candidate of BMT?

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beta thalasemia and sickle cell may be candidate of BMT?
« on: May 16, 2017, 04:32:53 AM »
My son is 20 months and is beta thal and sickle cell .he has
 taken hydroxyurea and folic acid plus lots of vitamins last 8 months.
He is currently doing fine and much active. We have yet to find out the effects
Of HU on her hb which is 8 to 9 last one year consistently.

But my question is should we be thinking of BMT . We want to
Make this decision before time runs out on us and it becomes
Too risky for her. Plz tell us the right treatments.
HBF was 35.7 % and HBA was at 17.3 % HB S 42.9 and HB A2 4.1 % and no any blood transfusion ever.

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Offline Andy Battaglia

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  • Will thal rule you or will you rule thal?
Re: beta thalasemia and sickle cell may be candidate of BMT?
« Reply #1 on: May 19, 2017, 01:57:22 AM »
You should talk to a bone marrow transplant center about this. Many centers will not do BMT for patients who are not transfusion dependent.
Andy

All we are saying is give thals a chance.

Re: beta thalasemia and sickle cell may be candidate of BMT?
« Reply #2 on: May 19, 2017, 03:46:42 AM »
Dear BMT suitable for my son?

 

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