Their emails should still be the same, Andy.
Are you emailing them at these addresses?
eva.chin@cooleysanemia.org
c.butler@cooleysanemia.org
If that doesn't work, email them at this address:
info@cooleysanemia.org
And if you cannot get in touch with them that way, try emailing Gina Cioffi (National Executive Director), and see if it bounces back.
g.cioffi@cooleysanemia.org
If you cannot get in touch with them at all by email, you can call them at: 1-800 522-7222
Let me know what happens.