Any Vitamins to avoid for thalassemia patients?

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Offline Andy Battaglia

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Re: Any Vitamins to avoid for thalassemia patients?
« Reply #15 on: August 26, 2017, 07:05:35 PM »
Thals benefit from taking natural blood thinning supplements. The blood of thals tends to clot or block blood vessels more easily, so these supplements are needed to help alleviate that.
Andy

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Offline dq

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Re: Any Vitamins to avoid for thalassemia patients?
« Reply #16 on: August 28, 2017, 12:39:11 PM »
Thals benefit from taking natural blood thinning supplements. The blood of thals tends to clot or block blood vessels more easily, so these supplements are needed to help alleviate that.

Andy I'd just like to point out that in some situations this may not be a great idea as splenomegaly can sometimes swallow huge numbers of platelets resulting in low counts so I would assume that getting the blood even thinner may cause lack of clotting when required most (wounds, cuts, grazes, blood tests, etc.)?

(of course depending on the degree of Thalassemia to start with)

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Offline Andy Battaglia

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Re: Any Vitamins to avoid for thalassemia patients?
« Reply #17 on: August 28, 2017, 09:37:19 PM »
The opposite is actually true. Low platelets are most often a result of oxidation. Vitamin E is a superb antioxidant that can help to prevent the destruction of platelets. I would not suggest more than 400 IU daily if platelets are low.
Andy

All we are saying is give thals a chance.

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Offline dq

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Re: Any Vitamins to avoid for thalassemia patients?
« Reply #18 on: August 31, 2017, 12:37:57 AM »
@Andy Hi Andy, but I would have thought the mass reduction in platelets is because the spleen is so large and they simply get stuck in there which is why thrombosis is the concern when having a spleen removed? I would assume that taking vitamin E if you still have your spleen would certainly be beneficial however?


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Offline Andy Battaglia

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Re: Any Vitamins to avoid for thalassemia patients?
« Reply #19 on: September 02, 2017, 11:50:16 PM »
Vitamin E would be valuable in either case, but if blood thinners are taken after a splenectomy, they say to avoid other blood thinning substances. Personally, I would like to see natural substances used instead of so quickly resorting to blood thinning drugs which can have many side effects.
Andy

All we are saying is give thals a chance.

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Offline dq

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Re: Any Vitamins to avoid for thalassemia patients?
« Reply #20 on: September 03, 2017, 12:12:44 PM »
Vitamin E would be valuable in either case, but if blood thinners are taken after a splenectomy, they say to avoid other blood thinning substances. Personally, I would like to see natural substances used instead of so quickly resorting to blood thinning drugs which can have many side effects.

@Andy
Totally agreed. 
I also had a little read about how blood thinners work.
My mistake, If I understand correctly they do not reduce numbers they either prevent the clumping process (aspirin) or they lengthen the time it takes for platelets to clump together (warfarin)..??

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Offline Lokkhi maa

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Re: Any Vitamins to avoid for thalassemia patients?
« Reply #21 on: October 01, 2017, 07:59:02 AM »

Dear Andy,

Vitamin E would be valuable in either case, but if blood thinners are taken after a splenectomy, they say to avoid other blood thinning substances. Personally, I would like to see natural substances used instead of so quickly resorting to blood thinning drugs which can have many side effects.

My baby taking fish oil so we stop giving her vitamin E ?
Lokkhi Maa

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Offline Andy Battaglia

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Re: Any Vitamins to avoid for thalassemia patients?
« Reply #22 on: October 06, 2017, 09:30:55 PM »
Lokkhi,

There is no reason she can't take both.
Andy

All we are saying is give thals a chance.

 

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