Hello Experts,
I am new to the community and this is my first post.
Recently, my nephew has been diagnosed with Beta Thal Major and he is 7 month old. He has undergone his first blood transfusion 15 days back as his Hb level was dropped to 6 mg. So far, we have received recommendations for continuing with blood transfusion until we find a BMT match from sibling.
Based on experience , I would really appreciate any guidance on what should be our next steps.
Also, can someone advice on below queries:
i) Is there any way to search for BMT donors in India. Any database to find matched HLA to consider for BMT. I came acorss "Be The Match® is operated by the National Marrow Donor Program" in USA but do we have something similar in India?
ii) We recently came across treatment options from Dr Ramanan with drugs like HU and Thalidomide. Should we consider this option for 7 month old infant?
iii) Any diets suggestions.
iiv Any other suggestions/advice would be greatly appreciated.