I am 32 years old and was diagnosed with HBH disease since 2013. My hemoglobin level is between 7-8. Never had blood transfusion until early 2016 that i had dengue fever that made my hemoglobin level drop to 5, so I got 3 bags of blood transfusion, then my Hb went up to 9. From time to time when i've got feeling very tired and dizzy that i could not stand, I'd had to get my blood transfusion , Second times blood transfusion was in december 2017 ( 1 unit of blood transfusion), Third times blood transfusion was in april 2019 (1 unit), last times blood transfusion was in december 2019.
I always take these Vitamin Supplements everyday
Folic Acid 5mg
Natural E 400iu
B complex
Total Calcium Magnesium + D3
Vitamin D3 1000iu
by talking these Vitamin Supplements, they help to keep me from tiredness my Hb level between 7-8 ( no drop below 7 ). But I heard that Natural Folate (5-methyltetrahydrofolate) is better, so i want to change talking Folic Acid to Folate, but it is hard to find Folate where i live, fortunately one of the doctors that i know had this Natural Folate , so i went to her place and had my health check up . I asked her that i wanted to stop talking my Folic Acid and change to taking her Natural Folate ,but i don't know which one should i take 1700mcg or 8500mcg ,
https://www.amazon.com/Designs-Health-L-5-MTHF-1000-Micrograms/dp/B004D3Z2QC or
https://www.amazon.com/Designs-Health-L-5-MTHF-Quatrefolic-Methylfolate/dp/B00HVGAM3G then she said that i had to have my blood and vitamin tested before she could give me suggestion, and I followed her, but after that she prescribed me these Vitamin Supplements for 3 months, then go to meet her again in the next 3 months(October)
1 - B-SUPREME ( Folate 200mcg, B1 100mg, B2 50mg, B3 50mg, B6 50mg, B12 250mcg, Biotin 2mg, Pantothenic Acid 100mg)
1 - SAMe (Folate 170mcg DFE, Vitamin B6 5mg, B12 50mcg, SAMe 200mg)
1 - Phosphatidylcholine ( 420mg)
1 - COMPLETE MINERAL COMPLEX
1 - DHA/EPA
2 -VITAMIN D COMPLEX ( Vitamin A 1500mcg, D 2000iu, E 3.9mg, K 525mcg) ( 2 Pills of this vitamin but i just take 1 pill a day because I afraid of high dose of Vitamin A)
I have these questions:
I have just been started to take these vitamins that my doctor gave me for a few days.
*so in a day i've just been taking Folate 370mcg and natural E 3.9mg a day , is these enough for Thalassemia Patients HBH disease?
*Should I go to my doctor and ask her to prescribed me more of Folate ( one of the two links above) and natural E ?
* If I take vitamin A 3000mcg a day ,is it harmful for me?
I don't understand why she would not prescribed more Folate to me which make me very worried that if i continue to take just this little of Folate and Natural E , my Hb level wil drop , I am very stress now.
Thank you