Hi Manal
Shaikha is wright am going to make it very short for all of us,,,parents or patients the only way to treat the thalass. is BMT or PBSC ..
so why we keep our self in bad dream ..let face the realety we have a thalass. child we need to treat him or treat her ......OK.. 1: even we keep the child on transfiusion and with desferal all his or her life OR 2: BONE MARROW TRANSPLANT from a match donor 3:BMT from the mother even if she is not match with her child ..( the mother alwys match 50% with her child)
off course me and you and everybody want to see our child in good health like other normal child BUT we have to live with our distney and look forwerd and keep our self update with all what the scince PpL descover and if we have a chance to make descussing with them that will be fine ..
Dear Manal and all my freinds it's our challange in this life we have to face it i was looking for any treatment to treat my son for 10 years but i was looking for nothing
( i was like the man who is in the desert who look for the water).. All of us or most of us have good knowlidge and good thinking ... SO LET US FACE IT ALL OF US
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KHALIFA
STATE OF KUWAIT