Hi everyone,
Lauryn went to her hemo yesterday. Her hgb dropped a bit (from 9.4-9.1 in a month) and her spleen is a little enlarged.
Her retic count went down and so did all of her other counts...
(I don't know what this means,but the md says it is great )?
Her flow murmur is still faint,which is also good. He sees a little yellow in her eyes, but I sware to you I don't see it. They are as white as ever.(Believe me, I check constantly!)
Shes only gained an ounce,but he says it is because she is more active. This kid hardly sleeps!!! I think you can relate when I say that is a good thing with thals! LOL. A lot of parents express their sympathy, but I tell them that is GOOD NEWS!!!!
Over all it was a great visit, and the Dr. is very pleased with her health overall.
He still imagines she will be between 8-12 months before her first transfusion.
I asked about exjade and he says it is showing promise (besides the rash) and we will prob. start her on that first before desferal.
I also asked about gene therapy and he says its all about being "politically accepted" and hopefully there will be breakthroughs in the near future.
I was telling him all we need to do is get a democrat in office,blah blah blah :blah , Get Bush out etc... and the room went silent.
I have a feeling he might be a republican.
We do'nt have to go back for another month.
Even though her hgb dropped a bit,theres nothing to say it wont fluctuate back up next time. Lauryn never ceases to amaze us.
I hope all is well with you guys!!!
Love,
Christine