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What's your ferritin level?

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Offline nice friend

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Re: What's your ferritin level?
« Reply #165 on: April 26, 2009, 03:16:53 AM »
 :congrats Khalifa , for your son's Sucesful BMT and normal S.fe levels ..

Best Regards
take care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
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Umair
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Offline KHALIFA

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Re: What's your ferritin level?
« Reply #166 on: April 26, 2009, 04:47:08 AM »
Hi
   SF said (May I ask why he's off of Desferal or any other chelator?)
     actually after bone marrow transplant the Dr said it's no good to give him Desferal or any chelator because it's harmfull for the new bone marrow so i start give
him alot of black tea and alot of water to encrease the voliume of the urine ....and in the 30 of june 2009 it will be 4 years from the second transplant ( first transplant is failure),,,,,,
                                  khalifa
                           state of kuwait
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Offline SF

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Re: What's your ferritin level?
« Reply #167 on: April 26, 2009, 06:06:08 AM »
Khalifa,

Sorry, I wasn't aware of your son's history. Alhumdulillah, he's cured and he doesn't have to deal with DFO or any other chelators no more!!!... totally makes sense! I wish your son all the best in his life, Ameen!

Thanks Andy for pointing this out.

Best Regards,
SF
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Offline Tedi

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Re: What's your ferritin level?
« Reply #168 on: July 13, 2009, 04:27:56 PM »
my last flevel is 1200
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Offline Dori

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Re: What's your ferritin level?
« Reply #169 on: July 20, 2009, 09:31:14 PM »
Quote from: Tedi on July 13, 2009, 04:27:56 PM
my last flevel is 1200

Congratulations!!!

As for me: It must be get around the 1500 again. I haven't take Exjade for a month, ok except 3 days. I planned to start Sunday, but I simply forgot to take it.
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Offline laiba mukhtar

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Re: What's your ferritin level?
« Reply #170 on: August 03, 2009, 11:09:27 AM »
Hi!
my ferritine s 1081 at this time. i am on ferriprox and desferal.daily 10 tablets.
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Offline nice friend

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Re: What's your ferritin level?
« Reply #171 on: August 03, 2009, 11:28:33 AM »
Hi Pcg,
 :congrats on controling n maintaining S.Fe level under the good range ...  glad to see that thals in Pakistan are taking interest to keep their Fe level controled and to keep their selves well managed .. its gr8 na :) yes ofcourse it is ...

Best Regards
Umair
« Last Edit: August 03, 2009, 10:04:26 PM by nice friend »
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline Zaini

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Re: What's your ferritin level?
« Reply #172 on: August 03, 2009, 03:00:02 PM »
Laiba,

Thats really great to hear that your ferritin is quite good,keep up the good work  :thumbup

Zaini.
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Offline laiba mukhtar

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Re: What's your ferritin level?
« Reply #173 on: August 07, 2009, 10:43:36 AM »
umair&zaini
               thanks for ur's appreciation  :smiley i am trying my best to bring my fe level to 500 or less.

take care
allah hafiz
laiba
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Offline nice friend

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Re: What's your ferritin level?
« Reply #174 on: August 07, 2009, 11:57:53 AM »
 :)
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline anthony arisco

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Re: What's your ferritin level?
« Reply #175 on: August 26, 2009, 08:49:06 PM »
Hi Ya'll,
This is my first post and I am learning a great deal. Thank You .Does anyone know if Green or black tea can lower your ferrtin? Mine was 438 last month.

A.J.
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Offline Manal

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Re: What's your ferritin level?
« Reply #176 on: August 26, 2009, 09:35:11 PM »
Hi A J and welcome to the site :wink i am happy to know that you are learning from the site :wink

Tea in general whether green of black inhibits iron absoarption from the diet, so it helps with the chelating medicines like desferal, exjade or kelfer/L1

Also there is other food supplements that combines with the iron free radicales and causes organ damge like IP6. IP6 is very effective with the chelating drugs and many of our members use it and find it good

manal
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Offline Ironman

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Re: What's your ferritin level?
« Reply #177 on: September 19, 2009, 05:34:51 AM »
I think the high score is still mine: 4200+ :yahoo
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Offline Lena

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Re: What's your ferritin level?
« Reply #178 on: September 19, 2009, 05:43:12 AM »

What will you do to get it down?
What are you doing now? I mean, what chelation are you on?

Lena.
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Offline kenrlane

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Re: What's your ferritin level?
« Reply #179 on: September 19, 2009, 05:44:16 AM »
I am a new member looking for help with Thalassemia. My ferritin level is 25 and I desperately need to increase that level, but as yet I haven't found the right supplement that will work. The side effect of constipation can become so severe that I am unable to take iron supplements regularly. I also have RLS and the usual medications for that problem need a high ferritin level to work properly. I am seeing a hematologist regularly but, I am curious to know if anyone else has or had a problem similiar to mine and were able to treat it sucessfully.
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