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What's your ferritin level?

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Offline Ironman

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Re: What's your ferritin level?
« Reply #180 on: September 20, 2009, 02:12:19 AM »
Quote from: Lena on September 19, 2009, 05:43:12 AM
What will you do to get it down?
What are you doing now? I mean, what chelation are you on?

Lena.

High scores are meant to be high... :biggrin
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Offline Dori

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Re: What's your ferritin level?
« Reply #181 on: September 20, 2009, 10:55:49 AM »
766  :yaaaaaay
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Offline Dori

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Re: What's your ferritin level?
« Reply #182 on: September 20, 2009, 10:58:53 AM »
Quote from: MGS on September 20, 2009, 02:12:19 AM
High scores are meant to be high... :biggrin

Absolutely not! (lt's even bad as bad spelling!)
You gonna get this down. Life is so much better when it is getting down and staying that way. Believe me. To reach 766 costs me more than 14years. It's better to win the low levels with excellent speed!!

Do we got a deal?
 :high5
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Offline EMommy

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Re: What's your ferritin level?
« Reply #183 on: September 20, 2009, 03:17:23 PM »
Wow.....  My girls ferritin is obviously too high!
They are at about 1600 and almost 6000!
I am trying to be patient, but I can't help to worry as their mother.
The nurse practitioner told us that the goal is to maintain the level, not to decrease it.  In no uncertain terms, I told her that was not acceptable! 
Now that they are both on the highest dose possible for their weights, I will wait for a bit to see if their ferritin comes down. 
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Blessings,
Rebecca
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Offline Zaini

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Re: What's your ferritin level?
« Reply #184 on: September 20, 2009, 03:25:34 PM »
Hi Emommy,

I am also in waiting,for my daughter's ferritin to come down,her ferritin is around 1400,so lets hope for the best :thumbs.

Zaini.
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Kathy11

Re: What's your ferritin level?
« Reply #185 on: September 20, 2009, 10:19:49 PM »
Welcome Kenrlane :welcome :welcome

I hope you find an answer to your questions and a solution to your worries.

there are already some answers in the discussion forum file. Please take time to browse through it.
I'm certain other members wil be able to assist you too.
Kathy
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Offline diskjockey

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Re: What's your ferritin level?
« Reply #186 on: September 20, 2009, 11:06:57 PM »
umair buddy remember i told u abt a person i met at blood transfusion centre located in  jail road and i also told u abt her achivement thant she got 1st or 2nd position in FSC.this pcjl1200 is that annonymous person.
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Offline Ironman

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Re: What's your ferritin level?
« Reply #187 on: September 21, 2009, 12:45:38 AM »
Quote from: Dore on September 20, 2009, 10:58:53 AM
Absolutely not! (lt's even bad as bad spelling!)
You gonna get this down. Life is so much better when it is getting down and staying that way. Believe me. To reach 766 costs me more than 14years. It's better to win the low levels with excellent speed!!

Do we got a deal?
 :high5

No deal... I want to keep my record! :clap
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Offline nice friend

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Re: What's your ferritin level?
« Reply #188 on: September 21, 2009, 01:38:51 PM »
Hi ya DJ ,
Buddy,
yeah , she secured 1st position again this year in  august .. i hope you will b able to find that post ... :grin

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
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Umair
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Offline Bostonian_04

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Re: What's your ferritin level?
« Reply #189 on: September 22, 2009, 02:28:47 PM »
Wow! Nice friend and Dore has done great job reducing their ferritin levels. Our 3yr old toddler is on chelation for last 1 year with desferal and her ferritin hovers between 1300 to 1500. Her hemo in Boston just recently increased the dose. As per him, at this young age we do not need aggressive chelation. is that right?
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Offline Andy Battaglia

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Re: What's your ferritin level?
« Reply #190 on: September 22, 2009, 04:46:04 PM »
Hi Bostonian,

You're correct. At her age and with relatively low ferritin, it is more important to get her system used to the chelator so that it can eventually be raised to the more effective level. Make sure her diet includes plenty of antioxidants.
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Andy

All we are saying is give thals a chance.
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Offline Bostonian_04

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Re: What's your ferritin level?
« Reply #191 on: September 24, 2009, 01:50:54 PM »
Thanks you Andy for your reply. Your reply put us at ease about the chelation dose our daughter is getting now.
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Offline Dori

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Re: What's your ferritin level?
« Reply #192 on: October 22, 2009, 03:16:24 PM »
Mine with up to 1000 again. I haven't taken it regular due illness. Now im ill again and taking anitibiotics, so I won't be suprise if it will go over the 100 again.
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Offline EMommy

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Re: What's your ferritin level?
« Reply #193 on: November 01, 2009, 04:53:46 PM »
I have great news about my daughters' ferritin levels.  They both dropped over 1000 points last month.  I can't remember the numbers right now, but I will post them next time.

The most important thing to note is that we stopped putting their ExJade in the juice boxes after another member of this board reminded me that there is aluminum lining in the juice boxes.  Also, I put their juice in plastic cups and mixed them with plastic spoons.  The more I thought about the medicine and how it is supposed to bind to metals, the more it made sense NOT to get the medicine anywhere near any metal.  IT'S WORKING!

I don't understand why there are not clear statements in the medicine inserts stating to use the medicine with plastic products or something to that effect.

PS:  Did anyone read how chelation therapy is being used as part of a treatment therapy for autism?  Very interesting!
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Blessings,
Rebecca
Mom to 4- Two Beta Thal Major (chosen)
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Offline Andy Battaglia

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Re: What's your ferritin level?
« Reply #194 on: November 01, 2009, 05:02:02 PM »
The use of chelation therapy with autism really does make me wonder about the connection between vaccines with mercury and autism. Many parents swear their children changed immediately after vaccinations but the medical establishment has been adamant in its refusal to condemn putting a toxic heavy metal into the bodies of babies. I am not convinced that any amount of mercury is safe.

I am happy to hear that your children are doing better. Metal containers can partially neutralize Exjade, so all contact with metal has to be eliminated.
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Andy

All we are saying is give thals a chance.
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