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What's your ferritin level?

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Offline swimfan

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What's your ferritin level?
« on: February 14, 2006, 07:23:13 PM »
The ferritin level should be measured at least once a year I believe for thal major's.
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Offline Danielle

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Re: What's your ferritin level?
« Reply #1 on: February 15, 2006, 03:36:40 PM »
Mine is 1600 right now, which isn't good, since it was only 800 last year.  I only skip Desferal a couple of times a week, but I really need to do it 7 days a week.  I need to get moving.   :(
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Offline Smurfette

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Re: What's your ferritin level?
« Reply #2 on: February 17, 2006, 03:13:20 AM »


 :huh

Hello to all,

Well I dont agree that ferritin levels should be taken every year...Here in sydney australia we have our ferritin levels taken either every month or every three months...

Mine at the moment is sitting on 500 which is very good...I am aiming to dropping it lower...


 :veil
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Offline baal

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Re: What's your ferritin level?
« Reply #3 on: February 17, 2006, 04:15:39 PM »
hi all

sometihngs in your countries must working better......
my ferr.level ist allways about 10.-16.000
many many years ago i had level in the dimension of 4-8.000
but 800!!!!   that must be a dream come trought...
greez from an old greek from cold germany...panos
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Offline Andy Battaglia

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Re: What's your ferritin level?
« Reply #4 on: February 17, 2006, 04:28:06 PM »
Pan,
My friend. It is so good to see you here.

Can you tell me what you are doing for chelation these days? Is it desferal and how much and how often do you take it.
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Andy

All we are saying is give thals a chance.
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Offline baal

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Re: What's your ferritin level?
« Reply #5 on: February 17, 2006, 04:42:10 PM »
hi andy

happy to see you here....
things are going very complikated...
since 1999 i had a port a caht and do desferal in very hight dose
but now my doc will start me in exjade...i stopt desferal now
i am waiting dayly for her call...
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Offline Smurfette

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Re: What's your ferritin level?
« Reply #6 on: February 19, 2006, 12:27:48 AM »
Panos,
 :huh

Do me a favour and dont stop your desferal untill your doctor calls you please....You can still put your pump on and wait for her or him to call you...Its important that you still wear it..while waiting...

Take care

 :veil


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Offline Ayesha

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Re: What's your ferritin level?
« Reply #7 on: February 19, 2006, 02:14:39 PM »
1061 :$
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-Ayesha
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Offline Eleni

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Re: What's your ferritin level?
« Reply #8 on: February 19, 2006, 10:57:28 PM »
326 lowest ever :) YAY
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Offline Andy Battaglia

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Re: What's your ferritin level?
« Reply #9 on: February 19, 2006, 11:05:50 PM »
 

      :yahoo
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Andy

All we are saying is give thals a chance.
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Offline Danielle

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Re: What's your ferritin level?
« Reply #10 on: February 22, 2006, 06:35:34 AM »
Quote from: Eleni on February 19, 2006, 10:57:28 PM
326 lowest ever :) YAY

Wow, that's awesome!  :clap

What have you been doing to get it that low, Eleni?   :huh
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Offline Prince

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Re: What's your ferritin level?
« Reply #11 on: February 23, 2006, 06:26:12 PM »
Mine latest report shows 1800
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Offline Angela

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Re: What's your ferritin level?
« Reply #12 on: March 03, 2006, 05:27:52 AM »
That is wonderful Eleni. Keep it up!
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Offline farfora

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Re: What's your ferritin level?
« Reply #13 on: March 03, 2006, 09:17:02 PM »
mine is 2000
am not using desferal so regular ,as i sometimes i get bored of it ,i ll try hard again
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Offline Eponine

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Re: What's your ferritin level?
« Reply #14 on: April 02, 2006, 03:06:52 PM »
After reading all your ferritin levels, I'm too embaressed to reveal mine...
I'm trying! I really am! I can't take L1 so my only saviour is Desferal which is... so diffucult to comply with... but I am trying! I am!
 :sigh
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