hi everyone...
Well, as you all know,today was "The Day". It was by far the most difficult situation I have ever been in (to date).
Lauryns hgb was 7.6, and the Md gave us the option of putting the transX off for another week or two. My husband was all for it, but I knew she was not looking good and her eating habits were "failing" horribly. We decided to go through with it. Knowing my child the way i do, I knew I had to keep her from the danger zone,plus she was starting to look "unhealthy"
The nurses poked Lauryn 5 times and could not find any veins in her limbs or feet. So, they had to resort to her head. (she looked like a little wounded soldier)
It was heartwrenching. I don't know who cried more...Lauryn or myself. The nurses were very nice and patient with us. Thank GOD.
She recieved 150 cc's of O+ positive blood.The whole process from beginning to end was 6 hours. The transX alone was 2. she had no fever or no reaction to the blood. i am thankful for that.
i still made a point to mention a port is not an option.
I am taking her back for a check up on April 16th (before we go to the conference in CA.). The Md said she shouldnt need a transX until April 30. I believe that is why he gave her 150 cc's. To make it last a little longer? That is what one of the nurses said,anyway.
The md said her spleen was 2 1/2 cm and after the tx, it will shrink again. he said her low level (base point) is 7.6. she will never get to that again. her bones will never be affected. she will be healthy.
Let me just say after the crappy day we had, it was all worth it so to speak because.....LAURYNS SKIN IN SO BRIGHT RED AND PINK!!!!!!!!!!!!!!!!!!
She did not sleep all day! not even when we got home at 5 pm. She just fell asleep after all of this about an hour ago 10 pm.
She is more vocal, her nails look freshly polished pink, her lips look like she had just finished eating a cherry popsicle.
I must say seeing her look so beautiful and HEALTHY made all of today and the transfusions to come, worth it. I am so thrilled to have my baby back.
i love you all so much and I thank you for all of your guidance and prayers. I do not know what I would have done without you!