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Hello all ...

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Offline dani75

  • *
  • 19
  • Gender: Female
  • thal.major patient
Hello all ...
« on: November 09, 2006, 04:40:16 PM »
hello thalaassemia friends and patients...
i'd like to chat with thalassemia patient from all over the world...
i'm thalassemia major also from germany, 31 y. girl... married with 2 childnren ...
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every day is a new day ...
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Offline Christine Mary

  • ****
  • 255
  • Gender: Female
  • Mother of Lauryn, who has Thal Major
Re: Hello all ...
« Reply #1 on: November 09, 2006, 06:35:58 PM »
Welcome Dani!  :flowers

You will LOVE this sight!! It has been very helful for me since discovering my child is Thal Major.(she is almost 3 months).
Can you shed some light on your expieriences being a major and all? How was your life growing up? I see you trasfuse every 3 weeks...what is your chelation schedule like? I am sorry to pry, but I can use any advice you have for me regarding my little one for the future. :biggrin 

Thanks,

Christine
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Lauryn's Mom
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Offline Lyanne

  • ****
  • 365
  • Gender: Female
Re: Hello all ...
« Reply #2 on: November 10, 2006, 05:41:10 AM »
Hey Dani,
  welcome!!! just like what christine said you will  LOVE this site, hope you could share and learn from this community . Does your kids have thalassemia too?
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LYANNE :yahoo
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Offline dani75

  • *
  • 19
  • Gender: Female
  • thal.major patient
Re: Hello all ...
« Reply #3 on: November 10, 2006, 07:28:27 AM »
no...my kids don't have thalassemia major ...

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Offline askari

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  • 15
Re: Hello all ...
« Reply #4 on: August 10, 2007, 07:42:36 PM »
hy hi nice to hear frm u .i am new member name is bis frm pakistan.24 and am dental surgeon n suferring frm the ssame disease.want to knw allot people n its good way of knowing
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