revealing the "secret"

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Offline red

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Re: revealing the "secret"
« Reply #60 on: December 26, 2008, 05:00:51 AM »
even tho it IS all the craze now..all these vampire shows, movies, ect..its rather hip to be a vampire now...
isnt it somewhat a coping mechanism to say your a vampire..or any other "joke" relating that??
i find that as i get older,
i do not want to be using the line "i am a vampire ha ha" anymore.
it almost sounds like a joke that is in all actuality true, so you kinda give an uncomfortable chuckle at the end.
ya know?
i dont know, i dont wanna be 30 and saying i'm a vampire to people ,
i mean..
i have respect for whatever anyone wants to say..
but,
i also think its a way to make yourself feel comfortable , with something you might not be so comfortable with.
and that to me is escapism.
 :dunno

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Offline cherieann

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Re: revealing the "secret"
« Reply #61 on: December 29, 2008, 08:48:53 AM »
I understand your point but we must all remember that what we may not like personally, may actually help others with how they cope with Thalassaemia.
At the end of the day what matters is that we are living and enjoying our life.
Much love to you all
Thalassaemia is a lifestyle not a burden.

Re: revealing the "secret"
« Reply #62 on: December 29, 2008, 01:38:09 PM »
you are absolutely true red,

and yeah its our difference in opinion, but in my point of view its just an expression that i'm bored just to tell them i've thalassemia instead of telling the sickness in front i rather start a new line of interesting story and end it with the truth or not (depending on situation).

As for Vampire story, i'm really think this vampirism suits thalassemia very well, not only vampire / draculla drink blood for his need not only his hunger, we also need blood, thou we are not immortal maybe we're the modern vampire after all?

and if you read it more about draculla / vampire stuff you'll find more similarity with thalassemia, I think that way thou ;)

btw, Happy Holidays!!


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Offline red

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Re: revealing the "secret"
« Reply #63 on: January 05, 2009, 04:17:55 AM »
thou we are not immortal maybe we're the modern vampire after all?

i like that   :yes


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Offline AL

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Re: revealing the "secret"
« Reply #64 on: January 05, 2009, 07:40:22 AM »
 :think


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Offline ye

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Re: revealing the "secret"
« Reply #65 on: February 17, 2009, 04:02:18 PM »
I am not so open about my case either. Not because i am afraid of being rejected by people who can't understand but because i don't want to be treated differently especially as a very fragile thing that should be well taken care of. sometimes i feel that i want to tell my friends but i don't know how to start and what to say. i don't want them to start worrying about me having this and being overprotective like most of the people who know. i prefer the way they treat me when they know nothing.
yeah, we really are comparable to vampires. I even have this joke-idea that we are descendants of the vampires. vampires evolved to thal people becuse they don't want to hurt humans anymore. hahaha ;D

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Offline Madhavi

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Re: revealing the "secret"
« Reply #66 on: August 29, 2009, 04:19:48 AM »
You know they say that Indian cinema is a mix of too many emotions....but I say dont give them too much credit-their inspiration is after all this life! So many emotions in one topic!!!!! There is almost a lyric in Red's post so we could take it as a song too!
In the end it is all about the person... It is not just about a disease/condition....this issue may be regarding anything else...
Life is tough to deal with and one learns as one faces it... till you come to a door you dont knock do you? I did not realise that I had the energy-physically and mentally to face it till I had to! One comes face to face with many questions and about personal things that you may want to share with someone... it could even be something as silly as a habit of yours...Doesnt everyone try to be nice when they meet someone for the first time. Especially when it is a date? And then later one realises where the whole thing is going and shares more...
I guess by now Red is on better terms with the whole issue...and even if not-you have your whole life to deal with it! Life will give you a variety of problems to deal with and then maybe this will seem like not such a big thing....or so I hope...lesser of many bigger evils huh!
Humour is a good way to deal with issues too, unless you use it to suppress your true feelings... so you can choose your own weapons to battle the wars in life provided you dont hurt yourself with those sharp edges...
Too much of preaching isnt too good for me....guess I better stop here...dont have the authority to go on more...you all know better!
Love to all...and may all have smiles on the lips and their warmth in the hearts....
Madhavi



Love and luck to all...

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Offline cherieann

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Re: revealing the "secret"
« Reply #67 on: August 30, 2009, 05:51:08 AM »
Hi Madhavi,
Its not about preaching its about having your say.
No one here has more authority than the rest.
Your post is well written which tells us your views and thoughts.
We are all the same and yet we deal with thal differently as we do with life.
Not all of us will experience the exact same things but it helps to have everyone's views or trials to help with our personal decisions.
That is what our community is about.
But I do agree with your post but I have a different way of talking. hehe
Thalassaemia is a lifestyle not a burden.

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Kathy11

Re: revealing the "secret"
« Reply #68 on: August 30, 2009, 09:48:11 AM »
Hi cheriann,

well written :clap :clap :clap :clap :clap :clap

For you :flowers :flowers :flowers :flowers.

I'm happy that our forum is a soft place to land we all are in need of undestanding, and it's nice to think outside the box


yes we need to keep an open mind "please dont count on mine"I already has the" mad cow disease"  :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl

I cant help myself :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl
I cant be serious ??? ??? ??? ??? ??? ???

Only fun and cheeks
Much love Kathy





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Offline cherieann

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Re: revealing the "secret"
« Reply #69 on: August 31, 2009, 05:55:02 AM »
Hi ya Kathy!
Hope all is well with you and thanks for the flowers.
You really shouldn't have. hehehe
It wonderful having people who have a warp sense of humour. :rotfl
« Last Edit: August 31, 2009, 08:29:14 AM by cherieann »
Thalassaemia is a lifestyle not a burden.

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Offline Madhavi

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Re: revealing the "secret"
« Reply #70 on: August 31, 2009, 06:39:41 AM »
 :hugfriend   :hugfriend   :hugfriend   :hugfriend   :hugfriend
 :hugfriend   :hugfriend   :hugfriend   :hugfriend   :hugfriend
 :hugfriend   :hugfriend   :hugfriend   :hugfriend   :hugfriend
 :hugfriend   :hugfriend   :hugfriend   :hugfriend   :hugfriend
Thought hugs would go well with the flowers....I wanted to get more....but then my fingers gave up on me! Real hugs are so much better than these virtual ones!
For you Cheriann...
Madhavi
Love and luck to all...

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Offline cherieann

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Re: revealing the "secret"
« Reply #71 on: August 31, 2009, 08:32:59 AM »
 :rotfl You did well with your hugs.
Real are always better than virtual but most appreciated.
Told you that its wonderful to have people to share moments with. :hugfriend
Now I'm off to go and blush.  :wub hehehe
Thalassaemia is a lifestyle not a burden.

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Offline Tedi

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Re: revealing the "secret"
« Reply #72 on: September 27, 2009, 05:33:11 PM »
I read all answers, so much different opinions...
I was keeping my thal in secret 10 years ago, now i dont, when i was dating  :wink, in first date i told boy i have thal., so if he is for me will understand me, will help me, etc., when i was searching for job i told i have thal, again no problems.
I am proud that iam different, why to keep secret  :wink
Just chelate! :wink

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Offline cherieann

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Re: revealing the "secret"
« Reply #73 on: October 01, 2009, 04:30:37 AM »
 :hugfriend Hi Tedi

You go girl.....
If he loves you, then he will accept you as a wonderful and caring person.
« Last Edit: October 01, 2009, 04:35:23 AM by Andy »
Thalassaemia is a lifestyle not a burden.

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Offline nice friend

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Re: revealing the "secret"
« Reply #74 on: October 01, 2009, 09:21:10 AM »
Quote
why to keep secret  
Hi Tedi ,
i agree, why to keep it or try tokeep it secret ... i never tried to keep it secret.. even i told and explain wat the thallassemia is without any hesitation and anything else like hesitation .. even i never tried to hide my pump .. and whenever anyone asked wat is this and why u r keeping this with you , i never hesitate to tell him abt that ... even i never kept it as secret on internet , while it was easy to keep it as a secret in chatting , but i never felt it is sumthing to keep as a secret .. my way of thinking is to be hhapy watever u r , and feel  proud whoever you r ... glad to read your post , tedi ...

Quote
If he loves you, then he will accept you as a wonderful and caring person.
WELL SAID CHERIEAN , :agree VERY TRUE

Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

 

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