stem cell transaplantation in thalasseamia major

Tell me the result about stem cell transplantation in thalasseamia major disease.

It depends on the person's age and general condition.

I was denied because of my age

Take care, Peace!

what is the general outcome for infants?? say in lauryns case? 8 mos. where do we start? HLA matching?

Hi Christine!

The sooner you do it, the better it is because of less complications due to fewer transfusion and no Liver fibrosis due to Iron overload. Plus a smaller child needs lesser amount of the precious stem cells.

Take care, Peace!

what are the steps we take sajid??? what is the process??

Well,

The first thing to do is to find the donor whose HLA matches with your baby. The chances are the highest in the siblings. However you can even find a match in an unrelated donor if you are lucky. The next step is choosing the right place for the transplant. Italy has the highest reputation for successful BMT. Next step is to manage the funds for it. You need to contact the doctors of that hospital for them to consider your case etc.

Take care, Peace!

Christine,

First step is to get the HLA match up done with the siblings(if any)? There are 25% chances of a sibling HLA matching.

Also, along with the BMT, you might want to get her HLA in the registry for finding possible donor's

This website might give you some info - http://www.marrow.org