Thalassemia Patients and Friends

Discussion Forums => Thalassemia Major => Topic started by: Atiya khan on April 07, 2009, 06:58:03 PM

Title: hi friends m new user here...
Post by: Atiya khan on April 07, 2009, 06:58:03 PM

hi all of u m also the patient of thal major.. n salso suffering from hepa c m married n 23 yrs old my husband is normal he dun hav any prob... what should i take n can i concieve baby?? periods in not having from last 3 or 4 yrs n also hav spleenectomy

Title: Re: hi friends m new user here...
Post by: Zaini on April 07, 2009, 07:10:25 PM

Hello Atiya,

Welcome on the forum,its good to see another married thal,that proves that thals can live a normal life,can you tell us what are your ferritin levels and how often do you transfuse?

High iron levels can effect your glands and in result hormones so it would be great if you have controlled ferritin level,we have a few members who are thal majors and moms also.

For hep C ,recently one of our members tried a combination of honey and Nigella ( kalonji) and found it really useful ,You can read about it in this thread.

http://www.thalassemiapatientsandfriends.com/index.php?topic=2639.0;highlight=nigella+cumin

Welcome once again and feel free to ask any questions you have in mind.

Zaini.

Title: Re: hi friends m new user here...
Post by: Andy Battaglia on April 07, 2009, 07:39:01 PM

Please do try nigella for hepatitis. Milk thistle is also known to purify and heal the liver and actually help liver tissue to regenerate.

As far as the periods, this is the result of iron overload and that must be addressed before you can consider pregnancy. If you do have high iron, you need to chelate aggressively to reduce the iron load, and I would highly recommend antioxidants like vitamin E and IP6 to help prevent damamge to your glands.

Title: Re: hi friends m new user here...
Post by: Pareeshay on April 08, 2009, 11:04:30 AM

Hi Atiya.
 
 :welcome2

best wishes,
Pareeshay.

Title: Re: hi friends m new user here...
Post by: Sharmin on April 09, 2009, 02:06:34 AM

Welcome to the site Atiya!!
Good to have you here!

Sharmin

Title: Re: hi friends m new user here...
Post by: erum minhas on April 17, 2009, 03:30:45 AM

dear atiya

congrats, like a normal women you can conceive but before that you should know about
1.cardiac status
2.serum ferritin
3. FSH and LH
4.U/S PELVIS for uterus size and anomalies
5.glucose blood

tell me then i ll guide you

dr erum minhas

Title: Re: hi friends m new user here...
Post by: Atiya khan on April 20, 2009, 10:24:11 AM

hi dr eum... my iron level is 600.. nsgpt 123 last time.. iwill done my these test jo apne bataye hain then i will snd u report here then pz do guide me about pragnancy... happy to read ur reply.. :) thanx,..

Title: Re: hi friends m new user here...
Post by: Atiya khan on April 20, 2009, 10:28:42 AM

hi sharmine the poeples here r too much nice n caring n helping i dun hav words to explain.. thanx al of u frnds....

Title: Re: hi friends m new user here...
Post by: Atiya khan on April 20, 2009, 10:49:34 AM

 Milk thistle ..???? what is it??i dun understand plz temme...

Title: Re: hi friends m new user here...
Post by: Zaini on April 20, 2009, 04:13:30 PM

Hi Atiya,

Milk Thistle is a herb which helps with liver problems,you can find it in capsule form by "the vitamin company" .

Zaini.

Title: Re: hi friends m new user here...
Post by: erum minhas on April 22, 2009, 03:19:56 AM

will you please give details of milk thistle, any raw thing is dangerous to liver instead helpful

Title: Re: hi friends m new user here...
Post by: Zaini on April 22, 2009, 05:06:21 AM

Hi Dr Erum,

Here are a few knowledgeable links,

http://en.wikipedia.org/wiki/Milk_thistle#Toxin-induced_Liver_Damage

http://www.mayoclinic.com/health/silymarin/ns_patient-milkthistle

Zaini.

Title: Re: hi friends m new user here...
Post by: Manal on April 22, 2009, 06:42:13 AM

Hello Dr. Erum

Milk thistle is usually sold in the form of capsules under the name Silymarin.

Find below the links concerning the disscuion and expierence of patients about it.

http://www.thalassemiapatientsandfriends.com/index.php?topic=968.0;highlight=milk+thistle

http://www.thalassemiapatientsandfriends.com/index.php?topic=2022.0;highlight=milk+thistle

http://www.thalassemiapatientsandfriends.com/index.php?topic=1717.45

manal

Title: Re: hi friends m new user here...
Post by: erum minhas on April 24, 2009, 03:22:54 AM

still have confusion regarding this milk thistle, does any one use it from you

Title: Re: hi friends m new user here...
Post by: Manal on April 24, 2009, 06:26:39 AM

Personally no, but it is prescribed by many doctors here in my country as a natural herb that help purifying the liver cells

manal

Title: Re: hi friends m new user here...
Post by: Zaini on April 24, 2009, 06:36:23 AM

I think Ambareen is using Milkthistle.

Zaini.

Title: Re: hi friends m new user here...
Post by: erum minhas on April 25, 2009, 03:24:06 AM

dear manal

will you give me any idea regarding 8th may programme

erum

Title: Re: hi friends m new user here...
Post by: Andy Battaglia on April 25, 2009, 07:14:56 PM

I know three Aussies from our group who have used milk thistle with positive effects on their hepatitis. Aston Dialo takes milk thistle and nutritional supplements and he is in very good shape and his hep is totally under control.

Title: Re: hi friends m new user here...
Post by: Manal on April 25, 2009, 11:40:06 PM

Dear Dr. Erum

Actually i prefer anything that relates tothe media, cause media is so powerful in terms of
1- Awarness
2- Preventation
3- Donations
4- Blood Drives

In the 8th of May we have to concentrate on the non-thal community. In my country, each year a big conference is held where a international and national doctors make lectures concerning the latest topics in dealing with thal. Here is the outline for the conference of this year
http://www.thalass-eg.com/tenth.html

manal