Thalassemia Patients and Friends
Discussion Forums => Announcements => Topic started by: Ayesha on November 25, 2009, 01:05:31 PM
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Thalassaemia Federation of Pakistan (TFP) is pleased to announce that the 6th National Thalassaemia Conference and Workshops will be organized from 12th to 13th of Dec, 2009 in Mirpur Azad Kashmir.
All TFP member societies, individuals and organizations are invited to participate in this conference.
In this regard, please revert to the following:
1) Federation will sponsor three individuals from each TFP member society and they will include 01 Patient, 01 Parent and 01 Representative of your society. It is requested to send those participants who have not previously attended the conference so that more and more people are provided the opportunity to participate in the conference. Deadline for conference registration is Dec 5, 2009.
2) Economy fare Train/Bus along with accommodation will be given by Federation.
3) TFP will provide accommodation on triple sharing basis (one room per society) for two nights.
4) TFP has decided to honor extraordinary Thalassaemic children. In this regard, please send us the name of one Thalassaemic child from your society, who have done exceptionally well in academic, sport or extracurricular activities by November 24, 2009. This record will be presented to a committee who will finalize the names of the children to be honored.
5) Federation also plans to publish a news letter which will be distributed in the conference and for that we request you to kindly email a write-up of your society’s activities since the last Thalassaemia conference in Karachi by 24th Nov, 2009.
6) Societies that have not submitted their TFP membership dues up to 2009, are requested to submit the dues before 24 Nov 2009. Please note that societies not paying their memberships dues by the given date will not be provided the above mentioned services.
7) Non members of TFP, kindly email or call TFP office for more information on how to attend the conference.
DETAILS: http://www.tfp.org.pk/Conf_annc.html (http://www.tfp.org.pk/Conf_annc.html)
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Thanks for the info Ayesha :) .
Zaini.
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Nice evenement Ayesha.
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Thanx Ayesha for sahring the info .. well i m willing to go but let's see if i can get permission :grin :D ...
Umair
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The conference has been postponed till March :dunno Confirmed by the Thalassemia Federation of Pakistan
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it always happens with me ..... but by march i wud b 2nd ever thalaseemic to have done MBA finance and 1st ever to have earned MBA ofinance after 4 year Bba Hons. Totalling up 17years of education ... but by then i wud no longer b able to recieve anything cuz i'll b in riyadh saudia as after education i'll spent my life there
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Waleed,
I am so impressed to hear what you have done for your physical well-being and for your education! Good for you!
Sharmin
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Waleed,
I am so impressed to hear what you have done for your physical well-being and for your education! Good for you!
Sharmin
Very sad and Very hAPPy to say this--i've done nothig in this world, patients like Laiba are real heroes . Im sad cuz i thought my achievements were gr8 being a thalassemic, but actually im no way near patients ive seen here . And im happy cuz i've seen a thalassemic(pcg) come up in a matchless way , and thats what my dream is ... to show all these things not to praise myself but to develop confidence n courage in patients to pin down over-protectionism and any single argument that makes differnce between a thal and non-thal ....... thats why ive written there Im not normal but supernormal . My wish is to convert this I into WE ... and mashAllah its already begun ...
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Waleed,
Thats great :hugfriend i am glad that you are posting daily,please keep doing that,in thal world we do need more and more inspirations,and you are one of them,so keep posting :yes .
Zaini.
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Waleed,
Thats great :hugfriend i am glad that you are posting daily,please keep doing that,in thal world we do need more and more inspirations,and you are one of them,so keep posting :yes .
Zaini.
Brother i always want to be there ... but i cudnt cuz i remain very bz in university, my pc in lahore isnt in order sso cudnt log oftn and spend much time live with friends and all that stuff Lahoris are known for ;)
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Waleed,
u r an inspiration, buddy .... people like u n Laiba such a role model for other thals ... dont say that u r nothing , u r a hope n source of strength for the parents of thals who thinks that their child cant live a normal life and for those parents who over-protect's their thal childrens ... good to see u posting here ,, ur input will always encourage other thals to take a step towards a normal healthy life and start living normal life .... plz stay in-touch :) .. not u r alone , but ur DP is also saying alot to other thals :) ... May GOD bless u in the way of life , and showers His all blessings on you ...
Lots of Best Regards
Take Care :)
Umair
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hi!
thank you :thankyou soooooo much umair and waleed bhai for saying all this about me and for using such nice words for me. :smiley waleed bhai u r also role model for all thals. you have done alot and your achievement is great..... and inshallah we will proof we are supernormal....
and waleed bhai congrats for completion of ur MBA in march. :congrats
:ty once again
laiba mukhtar
take care
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hi!
thank you :thankyou soooooo much umair and waleed bhai for saying all this about me and for using such nice words for me. :smiley waleed bhai u r also role model for all thals. you have done alot and your achievement is great..... and inshallah we will proof we are supernormal....
and waleed bhai congrats for completion of ur MBA in march. :congrats
:ty once again
laiba mukhtar
take care
COMPLETION OF MBA INT IN MARCH .........its maximum in the end of coming January
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Aray haan !!! ... i forgot to say something ,, n that is :congrats Waleed .... Congratulations for ur achievements n completing MBA ... May GOD bless u With a healthy , wealthy, joyfull and succesful life full of life ;) life ( succesfull life to every aspect ) Ameen ....
Best Regards
Umair
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hi!
thank you :thankyou soooooo much umair and waleed bhai for saying all this about me and for using such nice words for me. :smiley waleed bhai u r also role model for all thals. you have done alot and your achievement is great..... and inshallah we will proof we are supernormal....
and waleed bhai congrats for completion of ur MBA in march. :congrats
:ty once again
laiba mukhtar
take care
WHAT???? AM I PRESIDENT ZARDARI AND IS THIS PTV NETWORK ? where im being honoured without any achievement ? :rotfl ...... I m still there at my stance ... thats really not an achievment ... but yes wut u have done is ....................... cant change my stance until i myself want it ;) :shh
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laiba i read ur post u tansfuse at gangaram ...... when i'll return i hope i'll meet u there .. maybe u know kamran with maulana looks-- he's my very close friend
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Waleed ,
yaar you deserve that all :) , ...
Umair
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Guys!! I can't tell you how happy and proud i feel when i see thals from Pakistan who believe that they can do anything and they have accomplished what they wanted :hugfriend you all must know there were days when thal was (and in some regions it still is ) was considered a death sentence,parents were told (and are still being told unfortunately) that their kids will be lucky to live their teenage lives,i have lost a cousin to thal,i was only a kid at that time,but when my daughter was diagnosed,my aunt,who lost her daughter to thal,she was devastated,she didn't say much but her face was a story itself,story of despair and hopelessness,and i was looking upto her at that time knowing that she had a daughter with thal,but i am so happy that i found this forum,where i met people like you guys and other who gave me the hope that there is so much awaiting for my daughter in her life,and one day she might be writing this herself here,with a solid career and life.
I feel like i am rambling now so i should sign off :rotfl just wanna say again,i am so proud of you guys :hugfriend .
Zaini.
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hi!
waleed bhai
yes i transfuse from ganga ram... but i don't know kamran bhai...where are u now a days?????in pak????or not
hope to see u soon
laiba mukhtar
allah hafiz
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im in riyadh ,,, willb e reutning this thursday or saturday inshaALLAH ....
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Zaini,
I am very happy that thals all over can find hope in this site. When I was a member of TIF Board of Directors, some ten years ago, we went to Amman, Jordan, to hold a Board meeting there and at the same time to talk to some local associations and offer our help. On the last day there, we, the thals-members of the Board of Directors gathered and talked in front of say 300-400 people, Arab doctors and patients. The feeling I got there, was that each and every thal in the crowd was looking at us trying to find hope in our faces. There were thals and parents and doctors and nurses all related to thalassemia. It was very touching and we did our best to show them that their life is not over, that there is future, there is hope.
That is exactly what one can find in this site: Hope. And that is what you describe when talking about thals from Pakistan and I would add from all over and especially from countries where people are not yet convinced that thal is not a fatal disease.
That is why this site reminds me of that day I lived in Amman. You see, I get the same feeling.
Let's try to keep this site going. It is a window of hope to every thal.
Lena.
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Lena,
I can't even imagine where i would be with out this forum,it has given me so much knowledge that now when i talk the most arrogant doctor in the hospital does a double take and try to listen to me :rotfl and being informed is really necessary,we all know that.
Zaini.
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Lena,
I can't even imagine where i would be with out this forum,it has given me so much knowledge that now when i talk the most arrogant doctor in the hospital does a double take and try to listen to me :rotfl and being informed is really necessary,we all know that.
Zaini.
InshaAllah ur child will succeed ... just control iron ... raise her mentally strong, educate her to our beliefs and worldly knowledge . InshaALLAh she'll succeed here and most importantly HereAfter .
I'll write sumday about docs and nurses attitude ... what actually is and what actually shud b ...a long harsh words i want to put on them ..but right now im watching indian SONY TV CID
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waleed u r definitely super normal............
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waleed and zaini sis,
in our society being detected as thalassemic is very alarming, i had to bear the same feeling a month ago when najaf was diagonised, every one (outsiders) had the feeling that there was no future of najaf, and she would be lucky if she survived till teenage........ they gave the examples of other thalassemics....there attitude was as though they r condoling us
every time on phone and whenever i visited home i was trying to convince my family that INSHA ALLAH najaf will live a normal life.........
and as far as doctor's behaviour is concerned i just experienced it last week.......
we visited Children Hospital Lahore and i had a very sad feeling that no one is ready to hear us, they just kept on referring to other doctors, they didnt show any interest,
the doctors very arrogant and not ready to answer my questions.........
and the worst of all, the most senior doctor told us that there is no cure except transfusions and he said there was no need to come again to me just keep on transfusing her. no medicine.... no special dietry advice........nothing at all..........
he didnt even said a single word of hope for us............
i dont know what king of experience waleed has but it was my worst......
Abbas
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Abbas,
What you said,it happens,almost all of us has suffered through this experience,so the key is to educate your own self,and all doctors are not bad,some are semi bad too :rotfl who might give up their arrogance and will listen to you eventually,but you'll have to be patient,at least this has been my experience.To tell you the truth there are some awesome doctors in the world like Dr Vichinsky and Manal's son's doctor (i am sorry i can't recall the name) ,they are working seriously for patients,and in my city doctor who has inspired me a bit is Tahir Shamsi,i haven't met him much but he seems like a competitive one,and we have heard praise for Dr Javeria from Umair,so eventually you'll find one too.
Zaini.
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Yes Abbas, i agree with Zaini, you will definetly find a good doctor, keep searching and educating yourself.
Zaini, our hematologist is Professor El Beshlawy, may God bless her
manal
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Thanks Manal, I couldn't recall her name at that time :shy
Zaini.
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New dates for National Thalassaemia Conference have been announced by Thalassaemia Federation of Pakistan (TFP).
6th National Thalassaemia Conference and Workshops will now be organized from 17th to 19th of Dec, 2009 at Fatima Memorial College of Medicine and Dentistry, Shadman Colony, Lahore.
For further info about the conference, please contact TFP directly at their numbers: 042-5181549, 042-5181749.
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yes sisters,
i got a good doctor, we are also consulting Dr. Javeria i heard about her from umair, so after dreadful experience at hospital, we went to Dr. Javeria
i have a lot of soft words for her, she was a total contrast. when Najaf showed signs of anxiety in front of her she gave her a toffee, pampered her and Najaf went OK.
i agree that not all of them are arrogant but still lot of them are so...............
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Keep Smiling ,
:P Toffee hhhhhhmmmmmmmmmmzzzzzzzzz :P .... next time i will do the same wat Najaf did ,, :D :grins ....
Umair
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New dates for National Thalassaemia Conference have been announced by Thalassaemia Federation of Pakistan (TFP).
6th National Thalassaemia Conference and Workshops will now be organized from 17th to 19th of Dec, 2009 at Fatima Memorial College of Medicine and Dentistry, Shadman Colony, Lahore.
For further info about the conference, please contact TFP directly at their numbers: 042-5181549, 042-5181749.
Man thats Extremely Happy news for me ....... cuz by that dates i wud b back there in my very city lahore .. So Am I gonna see many of u guyz over there?
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Waleen ,
hopefully , i will b there to meet you people ... let's see if we can manage to meet .. i dont know if i m gonaa atend all three days or 1 or 2 ... so , let's see.. but i m soo excited to meet my all thalpals there ... Eagerly waiting for that day to come :P ...
Umair
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Hope to meet u guyz ..... if ofcourse they don't postpone it again :biggrin
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they can't this time, because I had a talk with one of Federation employee, he told me that its necessary to do conference once every year, if we didn't do this year WHO will not give us funds LOL! :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl
so they can't postponed it now :P
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Tariq bhai ,
r u coming to Lahore ?? woooooooooooooooooooo ........... :veil :veil ...
i m very excited n eagerly waiting to meet you guyzz ... ( jaldi sey aa jao ) ... :)
Umair
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I wish i can come too ......
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i also wish if i could come.......
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Zaini n Abbas ,
come one , try to come n attend the conference if you can easily :) ....
Umair
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I got my visa extended right now ... cousin is confirming my ticket maybe its for today cuz i hav to b there on Monday or else i'll b out of semester ...and for the conference am not sure of other days but if saturday comes in then i'll b definitely there ...though i wud try to attend all days if university lecture doesnt comes in way
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@Ayesha
Cool hahaha :rotfl :rotfl :rotfl :rotfl
@Umair
Yeah buddy buckle up. Bad boyz of Karachi are headed your way, my whole gang will be there :wink
@Zaini
I wish your wish comes true :biggrin
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they can't this time, because I had a talk with one of Federation employee, he told me that its necessary to do conference once every year, if we didn't do this year WHO will not give us funds LOL! :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl
so they can't postponed it now :P
What a management !!!! they need really to employ Management Trainees holding Degrees of Business OR Public Administration .... and i'v got one :rotfl
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Tariq ,
hurrayeeee .......... waiting for the day to come ...
Umair
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a mild happy and bad news ... There's no flight from riyadh to lahore until friday which is riyadh to lahore via bahrain .and im coming in that flight cuz theres no other flight :banghead...... inshaALLah i'll meet u guyz on saturday CONFIRM ...maybe i'll b there on friday too if ireach pakistan in early hours .... just wanted to tell so that nice friend(s) may keep that in mind...cuz this maybe the last conference i wud meet u guyz cuz after this i'll return to riyadh forever for my job and would visit pakistan maybe once a year only :wah .... so this conference is v.v.v.v.v. important for me :(
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Waleed n All ,
still hoping n wishing to meet you all ... good luck .. plz try to attend as much days n sessions u can attend ...
Umair
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Yeah Umair i got it confirmed ... i had to buy new ticket and travel from riyadh o lahore via bahrain ,its 12 hour i will reach the destination .... i will b there on friday InshALLAH .... u guys just tell me at what time conference wud begin so i wud come there at time ...
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Waleed,
when u reach Pakistan , just keep your Cell ON ( with that same no# u gave me ) and just give me a message , i will share all the details with you ... Best of luck my friend , looking forward to meet u ASAP :) .....
Best Regards
Take Care
Umair
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i know u people r waiting for my part of story n u people r expecting a series of long posts from me , and u people feels that i will write alot abt conference and will share my xpereince of attending the 1st Thal or any conference ever in my life .... and u people knows that i wil post that all bfore sleeping 1st night at home after conference ... i wanted to take my laptop there but due to uncertain programe and availability of internet connection there , i left this at home n went .... i wanted to meet maximum thalpals there in conference , ... .i think this story is longvor getting longer and u people are tired of reading this all lines i wrote above , so , long story short " i met to many thalpals the and it was nice to meet them all thanx for taking time n coming there n giving time to me and spending time around " .... n , sorry to those to whom i didn't give time or to whom i didn't manage to catch .. i tried my best to catch each n every thalpal but if i still missed someone then .......... better luck next time yaar , but , sorry to those to whom i didn't manage to give proper company :) .... hahaha, i think i was behaving like the same funny, n kiddy umair at conference , and as i usualy say that " m not as cool as i looks like in the picture at thalpal :D ... " i know many of u people would agree to thiss.........
Umair
dont worry my thalpalz , it was just a cracker post to say u b readdy possible long post ... it was just a warm-up post to increase ur stamina of reading post ;) ... i willtry to post story soon ....
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umair,
waiting for ur story......
Abbas
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As dramatic as ever Umair :heehee
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Umair is here again ,.. :wink.. .............. . ..
1st of all , Thanx to Ayesha for collecting sharing information regarding the timings , dates and all info abt conference ... othvice there was lack of info and a few diss information :rotfl , but it was great effort of TFP n other NGOs which organised that all , and it was an informative conference , lots of info related to the many issues especially one of topic of interest Hep-C treatment workshop , that answered many of my concerns ..... i m ready for treatment now , i met lots of my thalpals n other thals , i will try to write down the list ...... i think u people r affraid of long post so i m going to shorten this post and the short story is " BOHAT ACHA LAGA SUB THALPALS SEY MIL KAR AUR CONFERENCE ATTEND KAR KY :yahoo " ( it was NICE to meet many of my thalpals and attending conference was a gr8 experience ) ......
Umair
Kahaani abhi baqi hai !! :rotfl .....
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Dear Friends,
i had been thinking and plannig to write something about the conference, bu couldn't take some time out. FInally Umair has started the conversation :)..
I only attended the one day of the conference which was held in Pearl Continental Hotel Lahore, and that too because Fatimid gave up my name as the one who would be attending the "Executive Board Meeting" of the TFP (Thalassemia Federation of Pakistan) members.
The inauguration was made. the members and the host had their words, told that how the TFP came into being, its ongoing projects, and collaborations with the Govt. etc.. Then the shields were given to those who showed outstanding performance in education, or other sectors of life..
After that there was a refreshment. and finally there was a meeting of the Executive Board Members. I and Rida were there to represent Fatimid from Lahore center. their were other children from other center too. Tariq and Laiba were also in the meeting as the observers.
The meeting discussed the ways to raise the funds and other issues.
I also met Umair, Ayesha there. It was nice meeting all them.
Fouad
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Okiey ,
1st Day :-
as Fouad has mentioned first day was at PC hotel Lahore ....
as i was in contact with my thalpal via my cell , and was trying to convince them to come n join ... when i contacted Tariq bhai , he told me his train was a lil bit late .. but when i reached lahore i heard that they just reached hotel n mayb they would unable to attend 1st day ... i reached there at time or mayb a few minutes late .... i was looking around n sending SMS to y thalpals to know where they are ... as when i contacted Tariq bhai told me that mayb they cant attend the day ....i was in car that time , i contact other members and they told me they also cant manage to attend the day ... i was feeling really sad at that time ... then i made a plan to do some Drama ( dramay baziyan :grin ) and sent a message to all my thalpals that i m not gonna attend 2nd day if they cant meet me today ... i dont know if it was plan or anything else but finally i met to all but didn't meet to a few thalpals of Lahore .....but 1st thalpal i met there was Tariq bhai , i was completely in-touch with him so when he arrived at PC hotel he sent me an sms n informed me that he is at PC hotel now .. i was went toward the door of hall to catch hm earlier .... and waited for him , he was along with his friends m, but easy to identify :P .... it was really a super moment for me to meet n shake hand with him n his friends and yeah Umar bhai too , i knew him too ... ( mayb Tariq took some time to recognise me and iwasn't as much easy to recognise as other was ... as i m changed too much as i look's in my pic ... [ mein ny tau pehlay kaha tha k main etna cool nahi houn jitna os pic mein dikhta houn :rotfl ] ) .....
after that :
i spent a lil bit time with them n went back to my seat n start finding other buddies ... i was looking for Fouad ( i wasn't sure if he is coming or not , i had no contact no# of him so wat can i do was just looking around n keep looking ...then hi-tea programe :P , and then we all started meeting each other n introducing our self to each other , it was realy a super xperience...... i met my doc there , n she appreciated my presence there n introduced my self to a few other doctors n told them about my history abt all to wat i went through in past , and abt my recent health condition ...
during this i saw a man who was just planing to go ... i went near him and asked " r u Fouad ?? " he said "yes , n u ?? " and then mayb he guesed or i introduced myself .. then we had a lil chat n then he wanted to go bcoze he had many things to do ... then i went back to Tariq bhai n his friends , meeting Umer was such a nice experience , he is also a nice guy ... very polite n friendly :) ... when i was abt to go i met my doc again , she had a lil chat with me n my father encouraging me to attend the conference in future too .. .
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once again Thanx Ayesha for keep updating the info reagrding dates, venues, programe and tiimings of the conference :) , othervice it was imposible for me to attend the conference ..... Thanx alot ... :)
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will soon write abt 2nd day ....
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Umair,
It seems like you had fun :biggrin
Zaini.
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Asalaam o alaikum
We all MashaAllah had great time.., as per my assumptions I knew we won't get to listen anything new, but still there were few things, I have made notes, will write them properly and post it here soon... (will try to post it within this week, I came back very late last night, right now have to go for Test then tomorrow for Transfusion)
Am being called by Dawn News (TV Channel) for an interview tomorrow at their studio... so quiet a busy week for me *sigh* I hope I manage to represent the Pakistani Thalassemics well.
Keep praying, and stay tuned for the notes and interview fun ;)
I had GREAT time with Thal Pals I met at Conference :) Thank you so much guys!!
Take Cares, Allah Hafiz
-Ayesha
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Dear Umair, you made my work easy by writing all the details. Well yes i was heading for the meeting at the time when you came up...
Dear Ayesha, I can surely say that you would represent the whole Thalassemic family in a very proficient manner. Yes you can do it. Plz also inform us about the timing at which it would go on air., or the repeat telecast timmings.
Wish you a good and busy week ahead
Fouad
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I will be waiting for the notes, kuch pata tu chalay kia hua tha conference main
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i forgot to mention tha , my doc ws soo happy while she was introducing me to other docs there ... but the memorable moment of that day was when i first met to my doc and she introduced me to other docs :) , she ws so excited :) n me too ....
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Alright, am done with pictures, video and notes :) check the link
http://tfpak.wordpress.com/2009/12/25/notes-6th-national-thalassemia-conference-workshops/
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It is so nice to hear your stories. I can't wait for the conferences I will attend in 2010. :hugfriend
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Ops .. m late again ... :grin ... i will try to post 2nd day's story ASAP ... :grin ..
Dore,
Best of luck, for that conference :) ....
Umair
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Shameless self publicity :$ watch me tomorrow at 10 am and repeat on 4 pm on Dawn News :$
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Complete show has been uploaded :)
http://tfpak.wordpress.com/2010/01/24/faith-on-the-first-blast-dawn-news/
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Ayesha,
Thanks for uploading it on YouTube,i just saw it,you were awesome, :thumbsup .
Zaini.
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Too bad I couldnt open any of the links apart from not being in the conference with you all....maybe some day it will be nice to meet you all.....
All the best to you Ayesha...you sound like a great person!
Madhavi
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Ayesha,
Your interview was great. I was impressed with how well you handled yourself and took control of the interview and made sure your points were made. This is exactly what is needed to spread awareness, and it was also a nice tribute to Salman.
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Ayesha,
i just watched ur interview :) Good Job , Ayesha !!! Well Done :) ...
Umair
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Thank you so much :)
manojmass: why can't you open the links :S :huh
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Ayesha,
I just saw your video --- You are so comfortable in front of the camera, you've made all the right points and you are such a sweet person! Congratulations!
Lena.
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awww thank you Lena !! :)
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Madhavi belong to China and chinese keep a tight control over internet contents entering their wires, lots of stuff is blocked there. I think this might be the reason link is not opening.
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Yeah YouTube is blocked there.
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Dear Ayesha...........
Tariq and Zaini are right....my place of residence is such....
But there are many other good things to look at right now....so will let that small little hitch be overlooked...!
Some day will see you in person without the aid of any monitor!
Love,
Madhavi
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Dear Ayesha,
You are such a beautiful, elegant and composed young woman. Your interview just blew me away. God bless you for having such courage - to increase the awareness and to take the platform in order to encourage a more positive attitude towards the people who have thalassemia. God bless you my dear,
Love,
Sharmin
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Sharmin: am glad that I have been able to represent thalassemics, I was very nervous that how will I represent the positive part of us.. but Thank God, from the comments/compliments am getting am now satisfied that I have at least done 'some' of my part :)
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Ayesha "YOU" Rock
Keep it up dear
Fouad
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Thanks Fouad, am glad you liked it :)
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Ayesha, that was a great interview, I liked it so much .You were so positive and confident, keep up the good work :clap :clap :clap
manal
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glad you liked :) thank you!!
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i always still the channel when amina ali's first blast is there at dawn tv . I watched the interview on tv that day. Hav to apologize 2 dr.waleed bin azhar in advance but cant control 2 say the truth that Ayesha being a thal patient was far well confident straight clear 2the business n blah blah than the dr. .. that patient really deserved to be on air after i saw the interview ... well representation of all thals around the world and thats how it shud be ....as far as of feeling shame to publicize one's interview i think its not shame but a matter of priide for all us thalassemics .