Thalassemia Patients and Friends

Discussion Forums => Working Towards a Cure => Topic started by: 7assan on January 12, 2010, 09:06:45 AM

Title: plz anser me
Post by: 7assan on January 12, 2010, 09:06:45 AM

Hiiiiz my name iz hassan I have seen u website is veray good im from bharain  and im 19 yearz old I want ask u some thing plz anser me….
The Latest Update on Gene Therapy for Thalassemia
In wich age it will be possible ?
How much it will cost me dear andy?
Bcz I wantz to free from thalassemia so u can tell abut gene therapy I will be possible or not bcz im going for bone marrow transplant ……..

Title: Re: plz anser me
Post by: Manal on January 12, 2010, 10:41:16 AM

Hi baloch and welcome to the site

Gene therapy is still under trails. There are two on going trails one in Paris and the other in the United States by Thalagen. This means they are not yet available for public, but since these trails are on patients, this means means that we will be waiting few years.

You can read some of the posts about gene therapy in these links
http://www.thalassemiapatientsandfriends.com/index.php?topic=1115.0;highlight=gene+therapy

http://www.thalassemiapatientsandfriends.com/index.php?topic=2061.0;highlight=gene+therapy

http://www.thalassemiapatientsandfriends.com/index.php?topic=2018.0;highlight=gene+therapy

http://www.thalassemiapatientsandfriends.com/index.php?topic=2947.0;highlight=gene+therapy

Mentioning the bone marrow transplant, do you have a matched donor???
Please feel free to tell us about you or ask anything you want

Manal

Title: Re: plz anser me
Post by: Keep Smiling on January 12, 2010, 12:45:59 PM

 :welcome

hope u find ur answers........

Abbas

Title: Re: plz anser me
Post by: Andy Battaglia on January 12, 2010, 03:45:07 PM

When we talked to Dr Sadelain back in 2006, he told us that age would not be a factor in gene therapy. However, the health is, so chelate and stay in good shape. The costs will be high like with a bone marrow transplant, at least at first. However, this cost has to be balanced against the long term costs of thalassemia treatment, which is quite high itself. The lucky ones will be those chosen for trials over the years before it is approved.

Title: Re: plz anser me
Post by: Canadian_Family on January 12, 2010, 05:27:13 PM

We strongly believe that the cure will be available for our children in their life span. I hope soon though.

Title: Re: plz anser me
Post by: 7assan on January 13, 2010, 12:38:46 PM

yeah i have donor my donor is my sis

Title: Re: plz anser me
Post by: 7assan on January 13, 2010, 12:50:40 PM

:biggrinthnx andy foy urz repaly  :rolleyes
but i want to no abut gene tharepy  win it will be possible in this year or in next year or in next five yearz i want to no it will be possible my qize is this  :huh