Thalassemia Patients and Friends

Discussion Forums => Thalassemia-related Issues => Topic started by: nice friend on July 18, 2011, 02:09:28 PM

Title: need help for my thalassemic friend ....
Post by: nice friend on July 18, 2011, 02:09:28 PM

Hi ya Andy and  all thalpalz  !!.. long time no see but... :\ ..  here is sumthing wat's happening to on of my friend ,, can you guyz tell me wat goingg on with him and why is this happening to him ??? :\ ..

 Dentistry problem , left side swelled up , during this serum alkaline level increased too much n height was also growing ,,  then he felt multiple micro depression in the jaw bone ,, slightly irregular jaw bone of left side .  serum ferritin = 1100…all these problemes taking place only on  left side … transfusion intereval decreased,  physical activities increased playing cricket these days…..
conclusion :
Is this  bcoze of height increase ofr sumthing related to bone deformity …????

Title: Re: need help for my thalassemic friend ....
Post by: Andy Battaglia on July 19, 2011, 03:13:02 AM

Hi Umair,

Has he ever taken any drugs for bone strength, like Fosamax? These are known to cause necrosis of the jaw. It may also be a case of inadequate calcium intake in an active and growing person. I am wondering if it is possible that calcium has been diverted from the jaw to other bones.

Title: Re: need help for my thalassemic friend ....
Post by: Dori on July 19, 2011, 09:57:47 PM

Hi Umair, I want the same as Andy. We were warned for necrosis of jaw at tif 2011.

Title: Re: need help for my thalassemic friend ....
Post by: nice friend on July 25, 2011, 03:08:31 PM

Andy & Dori ,
No, he never been on Drugs like Fosamax ,,,  ....  but ,, He used to take Steroids for Juline arthritis. ..   why its effecting only left side ??  is it bone deformity ?? or it is  sumthing else ??? 

Title: Re: need help for my thalassemic friend ....
Post by: Dori on October 16, 2011, 11:50:59 AM

Umair, how is your friend doing now?
I am trying to catch up with the forums. i havent visit for a long time because a combination of things.

Title: Re: need help for my thalassemic friend ....
Post by: nice friend on December 09, 2011, 02:27:44 PM

Dori,
He's fine now ,, sorry for delayed reply  ,, same here i havn't visited forum since a long time , i dont know how/why i've been out of touch :\ ...

Title: Re: need help for my thalassemic friend ....
Post by: Dori on December 13, 2011, 10:21:48 PM

I dont know why I was away either Umair. But now I need my family from thalpal so I am back.
How are your pulse issues now?
Kind regards, always.

Title: Re: need help for my thalassemic friend ....
Post by: nice friend on February 10, 2015, 04:05:48 PM

Dori,
i am doing fine ,, pulse issue occurs sometimes ,, i am advised to go for Echocardiography  and i am planing for the T2* MRI too ,, now see when i'll be able to go for that thing .... . what about you ?? how are you doing ?? and how's everything gong on your side ??

Best Regards