Thalassemia Patients and Friends

Discussion Forums => Announcements => Topic started by: joyce on October 31, 2011, 03:14:12 AM

Title: Thank you to dearest Canadian Family!!!
Post by: joyce on October 31, 2011, 03:14:12 AM: Hi there....

I've posted on asking for desperal pump somewhere on last august, to my post Canadian Family reply back and send me thier unused pump. behalf of my family, i would like to thank them for thier willing ness sending us thier pump without me have to pay them back. thank you very much as the pump is very useful to my baby jovy-using it now,10 hours every 3 nights/week.

still im asking for unused desperal pump to be given out to thal patients around here that can't afford to buy 1.
thank you very much to Canadaian Family and to all !!
Title: Re: Thank you to dearest Canadian Family!!!
Post by: Andy Battaglia on October 31, 2011, 09:25:29 PM: I would also like to thank Canadian Family for truly practicing the thalpal spirit.
Title: Re: Thank you to dearest Canadian Family!!!
Post by: joyce on November 01, 2011, 02:09:10 AM: Ya Andy n to you too for your unconditionally support, help and love. we hope to see lots of members from this site to come forward and help those who really in need.

Thank you all!!
Title: Re: Thank you to dearest Canadian Family!!!
Post by: Canadian_Family on November 01, 2011, 05:00:48 PM: You are most welcome Joyce. I am so happy to learn that Jovy is using it. May Jovy have long and healthy life.

Regards,
Title: Re: Thank you to dearest Canadian Family!!!
Post by: Dori on November 02, 2011, 09:00:48 AM: Thank you, Canadian Family. :))
Title: Re: Thank you to dearest Canadian Family!!!
Post by: laiba mukhtar on December 04, 2011, 10:07:36 AM: that's great and thanks to candian family :)
Title: Re: Thank you to dearest Canadian Family!!!
Post by: mummy_timmy on December 05, 2011, 06:09:42 AM: hai Joyce,

I'm also from malaysia,selangor to be exact.How much is desperal pump in Sabah?
Title: Re: Thank you to dearest Canadian Family!!!
Post by: joyce on December 06, 2011, 02:42:32 PM: Hi there mummy_timmy- is ur son/daughter have thalasemia?
Oh well deseperal pump here in sabah at the moment is around RM2500++. For working family myb it is affordable but those who are self working it is very expensive. The price is actly just 1 of the problm, the main problm is to get the desperal pump itself because it is no where to find here. we don't know where to get it from? How about ur place? mybe it is lot easier to find the pump there?
thank you for concern, mybe we can exchange lot of informtns between sbh n slgr after this.
Title: Re: Thank you to dearest Canadian Family!!!
Post by: mummy_timmy on December 07, 2011, 04:08:29 AM: Hai Joyce,

my son is hbe/beta thal intermedia.He received his treatment at PPUM.Where in sabah did your son received his treatment?

I'm also not sure where to get it,but i will find out where and how much it cost.
Title: Re: Thank you to dearest Canadian Family!!!
Post by: joyce on December 07, 2011, 02:20:45 PM: Okay Mumy Timmy-
Welcome to this site, u are very welcoming here & this is the best place to shared our worried and gained knowledge. Credit to all members here!!
Title: Re: Thank you to dearest Canadian Family!!!
Post by: PhilipC on February 07, 2012, 05:00:16 AM: Hi,

If you contact the individual state Thalassaemia Associations, you can find assistance in obtaining a pump fairly easily.

Back when i was in Sarawak with the Association there (10 years ago), we worked towards getting government subsidy especially for desferal, previously when it was not subsidised, it costs RM30 per vial.