Hi
I went to the three appointments and you will find below brief points from each visit. Andy please i need to know your opinion, feel free...
First i went to the doctor concerned with the biological treatment. I printed all the cases and told him all the concerns. At the beginning he told me that he would like first to remind me that he does not work for the company or have any sort of benefits from them so he will not be defensive but rather objective and that his relation comes from the fact that he has been dealing with their medicnes for the past 12 years and found that they have been effient more than the others in the field of alternative medicne. Second he told me that int he case study talking about the bacterial infection, the case did not prove that it has come 100% from the injection because simply this kind of bacteria can come from different sources such as contaminated food like uncooked meat, in addition to two other things that he mentioned but actually i can not recall the scientific terms. He added that not all what is written on the net is true and the biggest example on this is also another medicne ( again i can't recall the name) that is used for bronchitis and is world wide used and you can read terryfying articles about it on the net.
About the other two cases he said that the toxinity or the fever ( which he doubts could happen as the medicne is 1 over 12 million diluted ) could result from uncalculated dose. When i commented ''howcome and supposedly homupathy medicnes are safe,''. He said that this is untrue, He said that it is wrongly known that homupathy medicnes if not beneficial they will not harm, and any thing that is taken in an excessive dose will harm even the drinking water, if you drink 10 liters for example, this will cause a strong decrease in blood pressure and a person may faint and this is just water so he stressed that any thing has its side effects but homupathy medicnes are better in this sense than chemicals in that the first is much more diluted.
When i commented that it is not known what are the ingriedents of such medicnes. he got out one of my boxes and showed me the inside pamphelet and it was written the details of the components. He said that there are doctors pamphlets which is more detailed than the consumer pamphelet and he sowed it to me. It had the same components like mine in addition to the percentage and units of eveything.
When i asked him how can a company of 40 years expierence and does not have any research about its products? actually at this question he was totally astonished and he said '' who said so??'' He answered that there are alot of research about all the activities of this compamy and is being published every year and they issue a monthly magazine telling their updates. He said that not only this but they have an annual conference in Germany where they describ how they manufacture their medicnes and the uses and detailed research about the medicne that as a doctor i am not that interested as a pharmathutical will be. I told him that nothing of this is on their site. He said that he does not know how they mange their site and whether it is active or not but he promised to get me some of the journals that publish their research. He insisted mainly on this point and that their publications are there many years ago and they haven't missed a year.
He added that these medicnes are sold in Germany on shelf and also exported and it is impossible for the German Minster of health to ignore this matter if there is any danger. He added that again he is on the patient side because as a doctor he has a big responsibility which is the patient health. He also gave me a number of one of the patients who has been using the medicne mentioned in the case studies for one and half years and doing very well.
So the above was his answers concerning my questions, what do you think?
He again explained that all this biological treatment is about cell repair in an attempt to have a better and more correct function. He reminded me that at the beginning he said that each body is different with a different mutation and each may have a different outcome. He still insists that when i incease the defiecnies that makes the body function well on the cellular level and thus may reflect better on thal. He insisted that it is not a must but it may. he suggested stopping this biological injection as he says that the body does no t use them so it is better to save them until we correct these deficencies through the IV fluids that have the already metabolized (ready to be absoarbed ) vitamins and minerls and amino acids. he said that one or two itms will not be corrected fast as they are water soluble and therfore the body absorbption of them is limited ( hope i understood right)
Second visit was to he endocrinologist, i told her about these deficiecy and the whole story and she commented '' again the cause or effect'' and she added that generally in Egypt we don't do these tests but there is no harm from taking these fluids but whether the body will maintain the correct levels or not will not be known unless examines by blood tests.
Concerning the growth assement, she was satisfied by the measurments and she said that the growth rate this time is better than the last three month ( i don't get it as the last three month he was-0.9 and this assesment was -0.9 too
![:huh](http://www.thalassemiapatientsandfriends.com/Smileys/classic/Stupid2.gif)
) But still Ahmad is underweight but i know that this is because he plays a lot , very picky in eating and when he eats he does not eat big quantities in addition that he almost swims everyday.
She wanted me to make extra testsl ike thyroid, fasting blood sugar, phosphrous , alkalinephosphatse, calcium and i will have te result by monday.
Third visit was to the hematologist and agian she commented that it is the first time to see the amino acids tests as we don't do them but her point is that even if we correct any thing it will not reflect as thalassemia is one of the metabolism disorders so it is like a visious circle. She did not mean to ignore them or to uncorrect them but her point is not to expect much and she told me that by the end of the year if nothing changed i should consider the hydrea immediatly .
Buy the way today i went to the eye doctor to check the effect of thal on the eyes. Ahmad eyes were good and his vision was excellent he was able to see the smallest symbols, the retina and eye pressure were normal but the doctor commented that chronic and sever anemia could over the years cause retina hemorrage ( spelling..), bilirubin ppt or increase in the number of blood vessels ( which is not good for the eyes) so an annual checkup is important .
Soooooo sorry for such a long post but i want your opinion
manal