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Dr. Sodani plans to start within 2013 BMT from haploidentical mother in India
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Dr. Sodani plans to start within 2013 BMT from haploidentical mother in India
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Dr. Sodani plans to start within 2013 BMT from haploidentical mother in India
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EugenioLaMesa
Cure Thalassemia co-founder and chairman
61
Gender:
Dr. Sodani plans to start within 2013 BMT from haploidentical mother in India
«
on:
August 28, 2013, 08:52:03 AM »
I'de like to inform the thalassemia families that Dr. Pietro Sodani and Cure Thalassemia plan to start before the end of 2013
BMT from haploidentical mother
to child with thalassemia in India at the Narayana Hrudayalaya/Mazumdar Shaw Cancer Centre.
A thalassemia child can do a BMT in
India
even if he
doesn't
have an HLA-matched donor, using the protocol 30 invented by Dr. Sodani. It took many years of work, but now here we are!
You can
read
more details in this post of the Cure Thalassemia blog:
http://www.curethalassemia.org/blog/2013/08/dr-sodani-plans-to-start-before-the-end-of-2013-bmt-from-haploidentical-mother-to-child-with-thalassemia-in-india/
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Eugenio La Mesa
Co-founder and Chairman
Cure Thalassemia
Live without Thalassemia major - No more transfusions
Become our fan on Facebook:
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Pratik
Thal Major.
826
Gender:
Re: Dr. Sodani plans to start within 2013 BMT from haploidentical mother in India
«
Reply #1 on:
August 28, 2013, 09:10:56 AM »
Wonderful!
I've one question. Is there any age group barrier? For example I'm 18 so are there any risks involved in case someone of my age wants to try? Not saying I want to, but info is always good, and if it advances well, why not give a shot maybe?
-P.
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Every child is special.
EugenioLaMesa
Cure Thalassemia co-founder and chairman
61
Gender:
Re: Dr. Sodani plans to start within 2013 BMT from haploidentical mother in India
«
Reply #2 on:
August 28, 2013, 02:17:01 PM »
Thanks for your question.
As you can read in the FAQ of the Cure Thalassemia website (
http://www.curethalassemia.org/faq/
), Dr. Sodani doesn't recommend BMT for patients older than 17 years, because the risk is too high.
The best results are with young (<7 years) children.
Best Regards,
Eugenio
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Eugenio La Mesa
Co-founder and Chairman
Cure Thalassemia
Live without Thalassemia major - No more transfusions
Become our fan on Facebook:
http://fb.com/CureThalassemia
Pratik
Thal Major.
826
Gender:
Re: Dr. Sodani plans to start within 2013 BMT from haploidentical mother in India
«
Reply #3 on:
August 29, 2013, 05:03:57 AM »
I see. Not a problem. We wait for gene therapy then. ;)
Hope is life.
-P.
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