Hello Siena,
I am still currently using Exjade and doing ok on it. I did have that very minor rash over 3 days but it was very mild. I find that if I don't eat after the 30 minutes I get stomach pain and a nauseas feeling so I always arrange to have something in my hand bag if I am out and about. I usually take it in the morning.
I was also finding that I had to be close to a tiolet but that feeling isnt so bad now. I am doing well on BUT I did mention all these symptoms to my doctor and he did lower my dosage. I am currently taking 500mg X 3 tablets (1500mg) My Ferritin levels went up just slightly since starting Exjade but aparently that has happened to other patients I have spoken to also. They all did mention that they have come down. I think you and I have been on the Exjade now for the same time frame, so i will be interesting to keep a track of our ferritin levels.
My husband is doing much better. He had another admission into hospital just a few weeks ago and has been home now for 7 days. (Fingers crossed he stays home) He is however doing much better. He is having more blood volume also now so that will help with his Hb and as we know a higher Hb always helps the rest of the body function alot better.
Keep in touch and thanks for the post. I hope this info helps.
Miaki xxx