Thalassemia Patients and Friends

Discussion Forums => Thalassemia-related Issues => Topic started by: §ãJ¡Ð ساجد on June 17, 2008, 06:42:45 AM

Title: Another big blow
Post by: §ãJ¡Ð ساجد on June 17, 2008, 06:42:45 AM

I have to sadly announce that I have experienced another consequence of Iron overload...

For a last few days I had been experiencing frequent thirst and dry mouth. I had felt the same several times before and got my Blood Glucose checked which always came out normal and I was just simply dehydrated.

So, this time I again got my Blood glucose checked just to be on the safe side and was expecting the usual result, but.... alas! it finally happened... The Gluco-meter was showing off in BIG FONT "HI" and Ketones flashing above; which when checked in the reference guide was >500mg/dl :quiver

My doctor advised me to get the Fasting levels checked in the morning which came out 344mg/dl which was quite an improvement in my opinion but not satisfying enough for my doctor. He then referred me to a diabetic specialist who was constantly insisting me to start on Insulin which I refused to start without trying the pills first.

Well, he eventually gave in and put me on Getryl (Glimepiride) 3mg for a week and said if this doesn't work then it's Insulin for sure.

Well, there was nothing much I could do. I just wanted to keep out another needle prick out of my life. Well, I've got six days to go to make the best of these pills and stay on them after the evaluation period and avoid another daily prick for the rest of my life. If not, then there's nothing else I can do about it :-\

Title: Re: Another big blow
Post by: maha on June 17, 2008, 06:59:28 AM

Hi Sajid
I really feel for you. As if it wasn`t enough to watch iron in the diet you will have to watch your sugary stuff too. Please start drinking a glass of karela(bitter gourd) juice. I have heard it really helps to control the sugar levels.Praying for you, be positive  inshallah you will be able to avoid needles.
take care
maha

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 17, 2008, 07:28:50 AM

Hi,

Yeah, I know about this classical remedy. I've been taking Bitter Gourd with starch drained boiled rice since yesterday :biggrin

Thanks for your prayers. I need all I can get :)

Title: Re: Another big blow
Post by: Lilian on June 17, 2008, 07:57:28 AM

Sajid,

I'm so so sorry to hear about your development of diabetes. I really feel your pain. I mean, as though desferal injections are not enough!! oh my goodness, i really feel like crying. Why do these things happen? haven't we've got more than enough??!! i feel so angry and frustrated.

I know you'll be strong.... i'll be praying for you... for you to be able to take the pills instead of the insulin injections. keep on smiling, and take care kays? pls pls do update us.

stay strong and happy always. a lot of things are outside our control. we have no choice but to just accept them with courage.

i just saw your profile and you know what.... i didn't have to play the youtube to know what video is that. as soon as i saw the static pic,i felt a chill - goosebumps raised on my body!! 'In the end' is my life song too. the song that expresses all my innermost feelings. i blast it everytime i'm upset of down. it brings comfort to me. ironic, i know, seeing how the lyrics are, but well, as long as they offer me solace.

Stay positive, my friend. you'll always be in my prayers.  :hugfriend

lilian

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 17, 2008, 09:24:53 AM

Thanks for your kind words and prayers.

When I feel down, I feel that song is my theme song, but not always; that's why I wrote "Sort of" as I eventually get out of it and remind myself of the pun with my Blood group "B Positive" :biggrin and it's time to deal Thal. with authority :bat

Title: Re: Another big blow
Post by: Manal on June 17, 2008, 10:14:09 AM

Dear friend Sajid  :hugfriend, i am constantly praying for you and whatever happens remember you are a fighter :hugfriend :hugfriend :hugfriend :hugfriend :hugfriend

manal

Title: Re: Another big blow
Post by: Zaini on June 17, 2008, 10:46:29 AM

Dear bro,

I am so sorry to hear about that, i wish i can do anything to help you,i'll pray that u won't have to use insulin,You are always in my prayers.

ZAINI.

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 17, 2008, 11:50:20 AM

Manal, Zaini and everyone!

:ty :grouphug

Title: Re: Another big blow
Post by: jade on June 17, 2008, 12:42:02 PM

Hi Sajid,

I am really sorry for what is happening. May God grant your wish of not using insulin injections and use pills instead and have it under control.

Take care

jade

Title: Re: Another big blow
Post by: Canadian_Family on June 17, 2008, 01:35:12 PM

Sajid,

I know you are a fighter, just stick to your guns and fight it off. Please take extra care of yourself and keep us posted.

Regards.

Title: Re: Another big blow
Post by: nice friend on June 17, 2008, 03:25:25 PM

Hi sajid :
its sad to hear abt it .  . its realy hard to handle diabeties with thalassemia but i beleive that u r much stronger and brave than  me and u will easily handle it.. it is good in favour of u so u diagnosed in early stages of diabeties . take care of ur self ... plz dont worry it is nothing  ...u can handle it .. in my case there wasn't  the time to try pills or anything else bcoze  my condition was realy critical and i had ulcer somewhere in my stomach.... so she advised to start isulin ... but have a quit many options u r lucky man ... take care

Title: Re: Another big blow
Post by: sah on June 17, 2008, 05:16:55 PM

Sajid,
You are in my prayers.

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 18, 2008, 05:28:42 AM

Thanks for your prayers everyone :grouphug


@ Umair

Buddy, I didn't have any options myself as the doctor insisted on Insulin. It was me who made him give me an option. :biggrin

Title: Re: Another big blow
Post by: Sharmin on June 18, 2008, 06:36:13 AM

Dearest Sajid,
I'm so sad to hear about your issues with your glucose levels.  My heart broke to hear the news - you are such a brave person who is there in everyone's time of need.  None of can bear watching you suffer in any way.  I hope and pray that the issue will resolved itself - and that at the very least you won't need to be on insulin  :pray

Most importantly, regardless of the outcome - you will be okay.  I know a 40 year old thalassemia major who is also diabetic - and he lives a very full life.  He is married, has a great job and lives a very active life.  Whatever the circumstances you will adapt.  My prayers are that you will do well with the pill - but most importantly that you will do well.

Take care Sajid, we are all here for you,

Sharmin

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 18, 2008, 06:44:55 AM

:ty Sharmin

Title: Re: Another big blow
Post by: cherieann on June 18, 2008, 07:54:57 AM

I know it's hard to accept that you may become more needle active...
It is never easy but you can do it. I am type 1 diabetic who has two different insulins which are administered 6 times daily. I didn't like it but I had a choice and that was let it bring me down or take control. I chose to take control. Believe me I know how you feel and it does not help when people tell you that you should be use to the needle. I will never get use to the needle, but I cope with the needle. I took control of administering my medications because I need to have control of my body and not be anyone's pin cushion. That was my reasoning and it got me through when I had to accept more needles. We all have inner strength and somewhere inside of you, you will find the voice that will help you face this next stage head on.
All of us will reach different trials at different times.. how we deal with these will either break or make us. I believe you will face this and continue enjoying life.
We are all here cheering you on.

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 19, 2008, 07:19:40 AM

Hi Cherieann!

Thanks for the encouragement

 :hugfriend

Title: Re: Another big blow
Post by: Danielle on June 20, 2008, 12:55:13 AM

Sajid sweetie, I cannot tell you how disheartened I am to hear this.  I'm so sorry. :(  As if it's not enough that we have to go through all the stuff we endure, but then to add this on top of it.  I truly hope that the oral meds work for you and that you won't need insulin.  I will keep praying for you.   :hugfriend  You are such a wonderful person and it makes me so angry when bad things happen to such good people.  :sadyup :bighug

Title: Re: Another big blow
Post by: sydneygirl on June 20, 2008, 10:56:54 AM

hi sajid,
sorry to hear of your developments,i do hope the pills work,try to keep ur spirits up & try not to let this get u down,try to think postive and take care,ur in my thoughts & prayers.

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 20, 2008, 01:16:13 PM

Thanks guys

:)

Title: Re: Another big blow
Post by: nice friend on June 20, 2008, 09:49:23 PM

Hi sajjid :
look all these post look a lot of people r showing their concerned for u .... buddy our plea & prayers r with u ..... dont worry ... u r realy a strong man .u prooved it many times. and i hope that and believe that med pills will work for u  and once again u will proove ur bravery... please  keep smiling        .......................................................
                                      Take Care
                                         Umair

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 21, 2008, 05:15:35 AM

Thanks bro,

 :hugfriend

Title: Re: Another big blow
Post by: nice friend on June 21, 2008, 02:17:37 PM

hi Sajiid :
mention not buddy.. all that i wrote in my last post was a a little bit that's wat i feel ... many more too say but... i have no words... how to explain ..  we need the people like u buddy so plz take care of ur self ......... thanx

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 23, 2008, 06:12:06 AM

Time's up.

The trial for the pills is over.
I lose.
414g/dl while fasting.

Oh well, :dunno
Time to roll up my sleeves and :catfight

Title: Re: Another big blow
Post by: Sharmin on June 23, 2008, 06:15:12 AM

Sajid,

I am sorry that things didn't go the way we had hoped - but you will not lose. 
I pray that you remain healthy.  I know it won't be easy to roll up your sleeves, but when it is not easy we'll be here for you.

You are not one to give up, and you certainly won't let this stop you.


Take good care Sajid,

Sharmin

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 23, 2008, 06:37:12 AM

Thanks Sharmin

:ty

Title: Re: Another big blow
Post by: cherieann on June 23, 2008, 07:10:58 AM

Sori to hear the results. :wah

But you don't lose, you get to show us how we are suppose to do it!
I plan on seeing more of your posts.
 :lousycomputer

Title: Re: Another big blow
Post by: Lilian on June 23, 2008, 08:06:28 AM

Dear Sajid,

So sorry to hear about the latest developments. But guess what, you're a fighter, i know. Your sleeves are rolled up, is your armor ready?? Go do battle, buddy!  :letsgo

I'll be cheering on for you :cheer that much you can count on.


aim for the stars... take care

lilian

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 23, 2008, 08:10:56 AM

Thanks Cherieann & Lilian,

Each word of encouragement gives me more...um...well...Encouragement! :grin

Title: Re: Another big blow
Post by: cherieann on June 23, 2008, 09:13:12 AM

 :rotfl You are very funny...

I'm going for the "You're NOT DONE!" type of encouragement  :rotfl

I want to see more of your witty words of wisdom :wink for the rest of us to enjoy.

Title: Re: Another big blow
Post by: Manal on June 23, 2008, 10:37:01 AM

Be sure that God does not do anything bad for us, you are an inspiration for all of us Sajid, please take good care my friend :hugfriend :hugfriend :hugfriend :hugfriend
manal

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 23, 2008, 11:11:31 AM

Cherieann,

I tend to address serious issues on a lighter side. After all, we all have to face tough times every now and then and don't need to get more worried by reading more sad posts. :)

Manal,

Thanks for your prayers.
We all need them.

Title: Re: Another big blow
Post by: Zaini on June 23, 2008, 11:56:11 AM

Sajid bro,

I am sorry for more needles,but i know that you can and you will fight,we are all here with you and praying for you  :yes.

ZAINI.

Title: Re: Another big blow
Post by: nice friend on June 24, 2008, 12:16:05 AM

Hey Sajjid :
i m sorry buddy ...its sad to hear that.. but... u always been like a fighter buddy.n we dont want to see u worried .u r an icon of courage 4 us bro... so b brave as u ever been. plz take care of ur self .... 
 :hugfriend :hugfriend :hugfriend :hugfriend :hugfriend :hugfriend
                                           Umair

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 24, 2008, 03:53:26 AM

Thanks guys,

Last night I took my first Insulin shot.

For some odd reason it stung more than Desferal and the whole site had a burning sensation for about an hour or so; even though the needle is sooo tiny and stayed in for only few seconds compared to the 12 hours Desf.

I couldn't sit properly and enjoy my meal. (Well, that's one way to stay on a diet)

I guess my belly and thighs are used to the Desf. but can't bear the Insulin :huh

In the morning I used my arms and it didn't sting at all and this time there was no burning sensation at all :grin

However, there's a problem. I cant reach the plunger of the syringe with my hand while making a pinch with the other. My sister is here for sometime who can do that part but what will I do when she goes back to her house ??? (My mom is soo weak hearted and doesn't even watch Nat Geo!)

Title: Re: Another big blow
Post by: maha on June 24, 2008, 05:42:25 AM

Hi Sajid
This was really unexpected. Keep faith and you will come out of this even stronger. Most diabetics take their insulin injections themselves, so they has to be some way. Maybe Danielle might be able to advise you. I can understand what your mom must be going through. May ALLAH continue to give her the strength
maha

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 24, 2008, 05:56:09 AM

Thanks Maha,

I can do it by myself ANYWHERE except the arms??? Just can't reach it!! (something like giving a Tyrannosaurus a tooth brush and telling him to brush his teeth) :biggrin

(http://www.ansp.org/museum/dinohall/images/walters_tyrannosaurus.jpg)

Title: Re: Another big blow
Post by: cherieann on June 24, 2008, 09:09:01 AM

Sajid I do know what you mean....

Today I had my appointment with a diabetes doctor. I never look forward to it as the nurses are never quite satisfied and it doesn't help that they don't understand Thalassaemia.
Normally I deal with the nurses so it was a change to see the doctor. My Hbalc wa 9.1 which isn't too crazy but I was quick to mention it had improved.
I don't think he expected to see tears running down my face. Even as I type this, the tears are flowing. :wah Tomorrow is a new day and I will pick myself up and plod on as I normally do. I guess I'm purely fustrated and voiced it today.
It was the first time that I told him that I get annoyed when they focus on just one thing and not me as a whole. They want me to test more but I'm not going to at the moment because my ferritin has hit the 4000s and I want to focus on that. One thing at a time for me. As always I apologise for letting them down. It was good though because he then spoke to my diabetes specialist who came and saw me to discuss how things were going. After answering his questions he was happy and told me that I've had it for 10 years and have had no complications, he was going to make a positive report and a few suggestions with how they interpret my results.
I know I should be happy, but I am my own critic and feel that I'm not doing enough. I know that I am, and that I have alot of friends, family and my haematologist who are proud of my accomplishments. I'm just in that questioning myself mode.
Tomorrow with my students will help me perk up and appreciate myself.
Hope all goes well with you.

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 24, 2008, 11:23:53 AM

I'm sorry to read what you have to deal with.

Please be strong. You know your body much better than anyone else.

Please don't put off either glucose or ferritin as both need to be kept in checked. You know you can do it as you have been doing it all these years.

Title: Re: Another big blow
Post by: nice friend on June 24, 2008, 01:16:32 PM

hey sajid dont b sad bro.
 
angle 90 degree  .
make sure that there is no air bubble in the syringe.
then inject it slowly.
u can also try on ur belly but i didn't try . so dont want to sugest it 4 u.
i hope u will not face anymore  troublence in taking insulin

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 24, 2008, 02:13:46 PM

Bro,

It's not supposed to be injected in the muscle. Insulin should be administered in Subcutaneous layer below the skin where it is loose like the belly, forearms, thighs and the buttocks.

I searched on the net and found out why it stung on the belly and didn't on the arm. Actually I injected it when the Alcohol was wet and that caused the stinging as it went in with the medicine too.

:)

Title: Re: Another big blow
Post by: cherieann on June 25, 2008, 01:09:58 AM

Thanks Sajid, you are right I do know my body but at times I get sick of the medical professions dragging me down.

Title: Re: Another big blow
Post by: Andy Battaglia on June 25, 2008, 04:09:39 AM

I wanted to strongly remind people that diabetes in thalassemics is almost always a result of iron overload in the pancreas. Although diabetes can be treated, getting it under control can be difficult as long as the iron overload condition remains. And if the pancreas is overloaded, the odds are that other organs are also iron overloaded. Aggressive chelation is the ONLY way to address the overload.

Title: Re: Another big blow
Post by: Sharmin on June 25, 2008, 04:54:41 AM

Sajid, I'm still laughing at your T-rex brushing his teeth analogy  :rotfl :rotfl :rotfl

I'm glad that you never lose your sense of humor  :biggrin

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on June 25, 2008, 05:06:20 AM

 :biggrin

Title: Re: Another big blow
Post by: cherieann on June 25, 2008, 05:52:34 AM

Thanks Andy, My haemotologist and I know that but not all professionals know that.
My doctor is trying to get the govt to grant a special order so that I can have the pill as well as my needles but she doesn't have much hope.
At the moment my desferal is nightly at the maxium dosage 5 days a week. But I know that I will probably decide to go back to 7 days 24 hours like before. I'm not keen as the pain and irratation was pretty bad but I'm tough... I just got to get my head around it.
I think once I can start knocking the levels down again. If that fails, I'll go back to prolonging the transfusions as much as I can to give the desferal a chance. Not recommended but I'm back in my fight mode.
You know Andy, that this last visit to the diabetes clinic was the first time it was acknowledged that although I'm on insulin I'm not really a type 1 and that its only because of my pancreas getting overloaded. Took me to speak up before they acknowledged it.
Hopefully they will start treating me as a whole and not just what they specialize in. That's what my haematologist always says. Boy I'm glad she is the boss and takes care of me.

Title: Re: Another big blow
Post by: namitha on June 28, 2008, 12:46:33 PM

Sajid and all my diabetic friends,

I am joining the diabetic club too!  :wah Got diagnosed in Sep 2007. I am on Insulin twice a day. I use the pen which is actually painless. I was shocked initially but I am cool now. I totally empathize with all of you. It's hard to cope with so many illnesses. But somehow we all cope.

Take care my friends and don't get disheartened.

Regards,
Namitha

Title: Re: Another big blow
Post by: nice friend on June 28, 2008, 07:58:09 PM

Hi Namitha
i m sorry to read abt ur diabeties ....
it is one of the problem to which sometimes some thals has to suffer b strong ..
dont dont loose  ur patience ...
its nothing which can stop u to fighting to thalasemia.....
keep fighting

umair

Title: Re: Another big blow
Post by: cherieann on June 28, 2008, 10:46:33 PM

Quote from: namitha on June 28, 2008, 12:46:33 PM

Sajid and all my diabetic friends,

It's hard to cope with so many illnesses. But somehow we all cope.

Take care my friends and don't get disheartened.

Regards,
Namitha

Well put, both you and nice friend.

Title: Re: Another big blow
Post by: Poirot on July 07, 2008, 02:54:50 PM

Sajid,

Am sorry to hear about your diabetes.

I was recently reading about a new pill that they are using to treat diabetic patients, especially obese ones. Apparently, these pills try and stimulate the production of insulin in the pancreas and try to extend the life of "beta" cells to enhance the effect. Are you aware of this and if yes, have you tried them?

I will try and see if I can get hold of the name of the pills.

Poirot

Title: Re: Another big blow
Post by: nice friend on July 07, 2008, 07:23:23 PM

hi buddys :
i wnt to add an info abt insluin that is ....
Exubera is the inhaler insulin of novarits/pfizer u  can search abt it ..
almost a year ago i heard abt it  ...
i think its available  now in market ..
here is the liink for
www.exubera.com
i also heard that insulin pillls will b available soon in the market ....... u can find out to this link  ..   writen below ..

http://search.yahoo.com/search;_ylt=A0oGkjS1bHJICjgAsk9XNyoA?p=insulin.tablets&fr=yfp-t-501&ei=UTF-8 

here u will find sevrel results abt insulin pills

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on July 08, 2008, 05:12:05 AM

Poirot,

No, I don't know about them. Please tell me more about it.


Umair,

I've heard about the inhaler and also know that it's discontinued due to cost issues. oh well, :dunno

Title: Re: Another big blow
Post by: Poirot on July 17, 2008, 11:00:58 AM

Sajid,

I can't locate the article where I had read about the tablets that stimulate insulin production in the pancreas. And, I can not even remember the drug name. It started with Sty.........., but that could be the brand name and not the generic one.

Meanwhile, I did find this resource - do not know if this is helpful?
http://www.diabetesselfmanagement.com/articles/Diabetes_Basics/Oral_Medicines_for_Type_2_Diabetes/Print

Poirot

Title: Re: Another big blow
Post by: Sharmin on July 22, 2008, 08:42:41 PM

How are you doing with all of this Sajid?

Sharmin

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on July 23, 2008, 05:09:20 AM

Hi Sharmin,

I'm doing nice. Yesterday I got my insulin changed to a mixed version instead of the rapid one. The cool thing about this is that I don't have to take it at lunch, so one needle less. :biggrin

I hope your son is doing nice now. All these needles and medicine would make anyone cranky.

Title: Re: Another big blow
Post by: nice friend on July 23, 2008, 02:13:56 PM

good to hear that  sajid ...
 :congrats

Title: Re: Another big blow
Post by: Sharmin on July 23, 2008, 02:33:40 PM

I'm glad to hear that you are adjusting well - and also to hear that you get one less poke now :) 

Sharmin

Title: Re: Another big blow
Post by: nanuaru on July 23, 2008, 02:37:08 PM

Quote from: §ãJ¡Ð ساجد on June 17, 2008, 06:42:45 AM

Hi Sajid,
 this the first time i'm writing to you .i know how painfull it for u. dear keep it up and cheer up we have to fight it out till we live . my daughter was declared thal major ten mths back it was heart breaking news for me specially if u were counselled at most premier institute pgi chandigarh privately ur seeing most expensive gyanecologist and if ur self are a doctor. day and night i curse my self but in end it was me only who came to terms that my baby will fight out with me to live a cheerful life.bye
     guilty fatherof acutie pie :wink
I have to sadly announce that I have experienced another consequence of Iron overload...

For a last few days I had been experiencing frequent thirst and dry mouth. I had felt the same several times before and got my Blood Glucose checked which always came out normal and I was just simply dehydrated.

So, this time I again got my Blood glucose checked just to be on the safe side and was expecting the usual result, but.... alas! it finally happened... The Gluco-meter was showing off in BIG FONT "HI" and Ketones flashing above; which when checked in the reference guide was >500mg/dl :quiver

My doctor advised me to get the Fasting levels checked in the morning which came out 344mg/dl which was quite an improvement in my opinion but not satisfying enough for my doctor. He then referred me to a diabetic specialist who was constantly insisting me to start on Insulin which I refused to start without trying the pills first.

Well, he eventually gave in and put me on Getryl (Glimepiride) 3mg for a week and said if this doesn't work then it's Insulin for sure.

Well, there was nothing much I could do. I just wanted to keep out another needle prick out of my life. Well, I've got six days to go to make the best of these pills and stay on them after the evaluation period and avoid another daily prick for the rest of my life. If not, then there's nothing else I can do about it :-\

Title: Re: Another big blow
Post by: Zaini on July 23, 2008, 03:08:28 PM

Hi Nanuaru,

Please don't feel guilty,whatever has to happen ,it happens,sometimes life just don't work our way,but to tell you the truth i feel myself blessed that my daughter is born in an age where oral iron chelators and other medicines are available,other wise 22 years back i saw my cousin dieing with the disease beacuse there were no chelators available at that time, at least in my contry. So cheer up ,roll up your sleeves and be ready to fight, :catfight we are all here to support you,your daughter is lucky she has a doctor for a father,you'll be able to understand medical terms more easily which i don't  :wink don't worry your cutie pie will live a long and healthy life INSHALLAH.

ZAINI.

Title: Re: Another big blow
Post by: Sharmin on July 28, 2008, 03:10:24 AM

Sajid, 

You had mentioned previously that you were going to pose some other questions to your doctor - I hope that they gave your concerns the attention you need.  Just a quick reminder in case you forgot when all of these other issues came up.

sharmin

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on July 28, 2008, 05:24:14 AM

Oh yea, I remember that.
I did ask the specialist when I went in for my Osteo kinda situation. Here is where I had discussed it on the forum:

http://www.thalassemiapatientsandfriends.com/index.php?topic=1252.msg14725#msg14725


Thanks for your concern :hugfriend

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on July 31, 2008, 06:42:29 AM

Last night, I went to my Diab. doc as the new Mixed insulin was not doing enough.

Now my dose has been increased as my levels were not fluctuating as much as they were in rapid; but now they stayed in the mid-highs (200-300).

Strange as it sounds; my BSL is lower after the two morning meals than the one after dinner. I keep struggling to keep my BSL before breakfast at bay. They are unusually high (250-300), compared to when I check before dinner which are much better (around 200).

Well, my Insulin requirement has increased from 24 units to 38 units a day :-\

Title: Re: Another big blow
Post by: Kathy11 on July 31, 2008, 08:23:07 AM

Dear Sajid'

I  feel sad that you now, have diabetics to content with, I admire how you still cope and encourage
every single one of us. You are my hero :clap :clap :clap :clap

watch yourself carefull  to prevent a diabetic comma.It appears as if you have unstable BSL.
Take care little brother  we are all here pulling for you.
Kathy

Title: Re: Another big blow
Post by: nice friend on July 31, 2008, 09:37:27 AM

hey sajid ;
dont wory bro ... well my insulin need is about 70 units a day
yes 50 in morning and 20 in evening ... so b happy i hope u will not need insulin as my need ... 

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on July 31, 2008, 09:42:47 AM

Thanks guys! Your encouragement keeps me going. :grouphug


Umair,

I guess it depends on our weight and other factors.

Since I weigh less, I guess my needs aren't that much.

 :dunno

Title: Re: Another big blow
Post by: nice friend on July 31, 2008, 10:05:19 AM

it could b  not know abt it...
well i m a little fat man ..... :D

Title: Re: Another big blow
Post by: Fadd on July 31, 2008, 04:33:15 PM

dear Sajid,


it was sad to hear this shocking news.  But i know that you are a strong guy and will fight against it bravely. 

Take care

Fouad

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on August 01, 2008, 05:30:07 AM

Thanks Fouad, :hugfriend

Yeah, it's a fight everyday. Today I woke up with a nose bleed and later when I took the insulin shot the site started to bleed as well.

Oh well, :dunno

Title: Re: Another big blow
Post by: cherieann on August 01, 2008, 09:26:25 AM

 :console
I believe we have these issues because God knew we are fighters.
Even when things knock us down, we get up and knock back no matter how long it takes.
We are fighters and we will get through our phases.
I am always thinking of you, my friend.

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on August 01, 2008, 11:56:03 AM

Thanks Cherieann,
 :hugfriend

Title: Re: Another big blow
Post by: nice friend on August 02, 2008, 10:17:14 AM

hey sajid keep it up buddy .. u r one of the storng man of the site :thumbup

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on August 02, 2008, 10:19:38 AM

Thanks Umair,

My BSL is back on track after on high insulin. Now I have to take less as I was getting low levels before breakfast.

Title: Re: Another big blow
Post by: Sharmin on August 03, 2008, 05:31:32 AM

Sajid,

I'm glad that your BSL is back on track.  Sorry to hear that you have had a rough break lately.  You are our brave hero - you are there for everyone, god bless you buddy  :flowers :flowers :flowers :flowers :flowers

Sharmin

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on August 03, 2008, 05:49:39 AM

Thanks Sharmin, :hugfriend

How's your son doing?

Title: Re: Another big blow
Post by: Sharmin on August 03, 2008, 06:01:18 AM

He's doing well Sajid - he has one Rituximab treatment left.  I think we can see the difference already.   
Have you seen his Disneyland pictures? 

Sharmin

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on August 03, 2008, 06:55:09 AM

No, I can't find them in the Gallery?!!?

I'd really love to. :yes

Title: Re: Another big blow
Post by: Sharmin on August 03, 2008, 03:48:03 PM

They're on facebook :)

Title: Re: Another big blow
Post by: §ãJ¡Ð ساجد on August 06, 2008, 05:39:24 PM

Oh thanks,

I saw them. They are great :happyyes

Title: Re: Another big blow
Post by: Sharmin on August 07, 2008, 04:46:31 PM

I hope that you get to visit Disneyland one day:)  I know you would love it!

Sharmin