Thalassemia Patients and Friends

Discussion Forums => General Chatter => Topic started by: Bostonian_04 on August 04, 2016, 06:53:30 AM

Title: 504 plan for Thal kids???
Post by: Bostonian_04 on August 04, 2016, 06:53:30 AM
yesterday I learned in Little E's school about 504 plan. The parent that told me about it has her child go for weekly infusion for a medical condition. Since little E goes every 3 to 4 weeks and misses out 1 day of school every 3 to 4 weeks,  I am wondering if it is beneficial to have a 504 plan for her and how to go about it.
Since I am not raised here, hoping someone (hint hint: Andy :)) will 1st tell me if 504 plan is good to have and then how it helps a child. currently we do not have issue with E missing school as I work with her home room teacher and explain and so far no issue. But I go thru this process every new school year and always feel anxiety till I get a good response (that I want to hear) from her teacher. Will 504 plan take care of that anxiety? More than that, will it help E? Any suggestions or comments?
Title: Re: 504 plan for Thal kids???
Post by: Andy Battaglia on August 04, 2016, 10:58:16 PM
I think CAF would be best prepared to advise on this.
Note the new phone #

Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
212-279-8090
Fax: 212-279-5999

Patient Services Manager
Eileen Scott
escott@thalassemia.org
Title: Re: 504 plan for Thal kids???
Post by: Bostonian_04 on August 09, 2016, 06:24:22 PM
Andy,
I did not think about writing to CAF. Thanks for the suggestion.