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51
Diet, Nutrition and Supplements / Re: Wheatgrass Juice Dosage for 5 years old
« Last post by BobaFett on February 20, 2023, 08:36:20 PM »
Update:

Currently giving 2g of wheatgrass juice powder per day.
52
Thalassemia Minor / Re: Supplements for thal minor
« Last post by VB on February 06, 2023, 05:41:02 AM »
Hi Andy,

Thank you for your response. As per the CBC blood work, my 11 year old son's hemoglobin is as follows :

     Hemoglobin       10.8       (11.7-14.1).

Hemoglobin Electrophoresis shows "Consistent with Thal Minor".

Do you recommend any other testing ? We are hoping for him to grow more and gain some weight.

Thanks!



53
Diet, Nutrition and Supplements / Wheatgrass Juice Dosage for 5 years old
« Last post by BobaFett on January 30, 2023, 12:48:01 AM »
Hi all,

Need some advice on how much per day should I give my child wheatgrass juice powder?
1 serving is 3 grams (for adults). Take 1 to 2 servings per day.

Attached with photos of the product.

Thanks in advance.
54
Curing Thalassemia. Bone Marrow & Cord Blood Transplant / Need suggection about Haploidentical BMT
« Last post by pareshdas1985 on January 28, 2023, 08:48:37 AM »
Sir please suggest me, should i go for a haploidentical BMT for my single 5 years thalassemia GIRL at Appolo Hospital Delhi.

Age - 5 years
weight - 18 kgs
Ferritin  - 2200 (as on 22/10/22)

55
Diet, Nutrition and Supplements / Re: IP6 dosage for 5 years old?
« Last post by BobaFett on January 16, 2023, 07:52:12 AM »
I see, thanks Andy for the feedback.

Can IP6 be consumed after she wakes up, together with Exjade, both 30 minutes before her breakfast?

As from what I read, IP6 will be best consumed on empty stomach.
56
Diet, Nutrition and Supplements / Re: IP6 dosage for 5 years old?
« Last post by Andy Battaglia on January 14, 2023, 08:11:59 PM »
IP6 is a very mild supplement. I would suggest one capsule for a child, but more would not harm the child. It can be opened and mixed into food if swallowing a capsule is an issue.
57
Diet, Nutrition and Supplements / IP6 dosage for 5 years old?
« Last post by BobaFett on January 14, 2023, 12:11:58 PM »
Hi,

Found an IP6 supplement but the dosage stated is for adults.

For General Wellness:

The recommended usage is 2 capsules twice a day on an empty stomach.

Each dosage contains:
IP6 - 800mg
Inositol 200mg

Wondering what's the dosage suitable for a 5 years old (16kg)?
58
Thalassemia Minor / Re: Help with my test and symptoms please!
« Last post by Thalminorguy on January 11, 2023, 12:25:41 AM »
Thank you so much Andy! I just ordered B12 and Magnissuim vitamins.
59
Working Towards a Cure / Re: Etavopivat/ FT-4202
« Last post by Andy Battaglia on January 07, 2023, 08:40:09 PM »
Have the doctors given you any information about how well it is working in patients already in the trial? I was also curious whether or not Luspatercept, Reblozyl has been tried yet.
60
Ferriscan® / Re: MRI hesitation..why do it??
« Last post by Andy Battaglia on January 07, 2023, 08:30:22 PM »
Happy New Year hopefulmommy,

Has she had an MRI of the liver yet? At the least, a baseline should be done to make sure the ferritin readings accurately reflect the iron load. If the iron is proven low by MRI, I don't think that the MRI is essential annually, as long as the ferritin stays low.
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