Little princess is now 2 yrs and has been on regular Transfusion (15 so far, once in 4 weeks) and recent serum ferritin level is at 1374 ng/ml and Serum Creatinine is 0.6 mg/dL
After discussing with our hematologist, we have been advised to start Asunra (20 mg/kg) - 300 mg/day. I had discussed with her on splitting the dose into two and starting with 10 mg/kg and she agreed. An advise / experience from many members here.
Currently lil princess is on following supplements:
1. Zincovit syrup - 2.5 ml/day
2. Calcimax syrup - 5 ml /day
3. Folic Acid tab - 5 mg/day
4. Wheat Grass powder - 1/2 teaspoon/day (started since 3 months compliance is bit of an issue, but I guess it helps maintaining her Hb)
I discussed about starting vitamin E to reduce oxidative stress from iron overload. She had advised Vitamin E (50 mg/day) and additional zinc supplement.
I have also ordered for IP6 + Inositol from Dr. Shamshuddin, but it may take some time before receive the order. Would request your opinion / advice going forward and wish us good luck with Asunra
Many thanks!
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ZINCOVIT Syrup: vitamin A 1250 IU, vitamin D3 100 IU, vitamin E 2.5 IU, vitamin B12 0.5 mcg, vitamin B1 0.75 mg, vitamin B2 0.75 mg, vitamin B6 0.5 mg, D-panthenol 1.25 mg, nicotinamide 7.5 mg, copper 25 mcg, zinc 5 mg, L-lysine monohydrochloride 5 mg, potassium iodide 50 mcg, carbohydrates 2.78 g, iodine 38 mcg, selenium 10 mcg/5 mL.
CALCIMAX PLUS susp: calcium carbonate 625 mg, vitamin D3 200 IU, magnesium hydroxide 180 mg, zinc gluconate 14 mg/5 mL.
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