Unrelated Bone Marrow Transplant.

Almost there!

Patience and persistence will eventually pay off.

       Hi Omega,
 best of luck how is your daughter now hope she has recovereed well. in near future i also wish to get my nanu bmt done .I'll ask for your wishes and blessing then
                   bye
                           guilty father of cutiepie     

Hi All,

It has been more than 6 months from day 0 of the Bone Marrow Transplant. My daughter still taking steriod and other anti-GVHD drugs. The doctor is cutting the drug at a very slow pace in order to control the GVHD. GVHD can caused a lot of problems in Unrelated BMT cases and the drugs used to control GVHD are extremely expensive.

My daughter's blood count is stabalized but not back to the normal level at this stage and it takes time to go back to the normal level. The good news is her HB level is around the region of 13 - 15 and she is not transfused for the past 6 months. Platelet is around 60000 - 80000 at this stage. White blood count is the only one which give us problem and it's around 2100-3000 currently. We are not sure if the drugs my daughter is taking can suppress the white count.

The Bone Marrow has engrafted successfully in this case but the doctor is keeping a close eye on GVHD and other side effects of the drugs. Blood test has to be done weekly to monitor the blood count. Hope will get all this over in 1 or 2 months time. We have been very very stressful from day 0 till today.

Thank you.

Hi Everyone

My daughter is recovering well and I expect  a few more blood letting session to go before her ferritin reach the targeted 300.

I was informed by the hospital that the storage of my daughter's back up bone marrow about 2.5 years ago is expiring soon. I am working whether should I continue to store the back up bone marrow or not. The storage costs is not cheap and therefore I am seeking some advices on this matter.

Thank you very much.

Best Regards,

omega

Hi Omega ,
BEST OF LUCK ... i hope you and your daughter will have better than the best result take care wish you all the best .....

Happy New Year to Everyone.

I received a good news this morning, my daughter's ferritin result is 185 after the 10th Blood Letting. I have been looking forward to this day for a long long time! No more blood letting!!!

Her blood count is all right. The only problem she has now is her hair grows very slow (she did not shave her hair when the transplant was done) and there are some discolouration on her face (the doctor said it would be permanent).

She will be going to the eye specialist tomorrow and hope she will be fine.

Thank you.


omega.

Omega,

I am very happy to hear that your daughter is doing well and that her ferritin levels have come down.  I hope that it is smooth sailing from here for you and your family.

I hope that her eye test goes well   

Please continue to keep us posted,

Sharmin

Omega,

Nothing happier than this news indeed. I hope your child will continue to do better and it stands for the rest of us as well.

Hi Omega,

I am happy to hear that your daughter is doing well. Unfortunately, your daughter won't be the first one with discolouration. Though I really hope it will go away (a bit).  I hope her eyetest went well!!! 

Dore

Congratulations Omega 

Zaini.

Omega, congratulations i am really so happy hearing the wonderful news, please keep posting, you are an inspiration, good luck and keep in touch

manal

Hi Omega ,
  for your daughter's results , may she will improve much more in next few weeks ...
best of luck for your daughter ..

Best Regards
Take Care
Umair

Hi Omega!
Sorry for such a delay in writing in here....
I can imagine what all you have been through....hope all is well now.....and you all are relaxed....
Lots of love to your family,
Madhavi