FerriScan : Non-invasive measurement of liver iron concentration

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Offline nice friend

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Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #30 on: June 27, 2008, 09:22:14 PM »
Thanks zaini  :biggrin
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

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Umair

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Offline nice friend

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Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #31 on: June 27, 2008, 10:03:16 PM »
miss sylvia :
sorry to say that i didn't find contact e-mail of Dr.m.karman.sidique .... but i m still trying ....
i got these contact numbers of deparments of shaukat khanum hospital  :.


Hospital Administration
Tel: 92 42 5945100 Ext. 2372
Fax: 92 42 5945205



Medical Oncology
Tel: 92 42 5945100 Ext. 2331, 2444
Fax: 92 42 5945206

Shaukat Khanum Memorial Cancer Hospital and Research Centre

Johar Town
Lahore 54000
Pakistan

Tel:  +92 42 5945100
Fax: +92 42 5945208
UAN: 111-155-555
Toll Free Number: 0800-11555  its a tool free no of SKM
Email: marketing@skm.org.pk

Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #32 on: June 27, 2008, 10:20:24 PM »
I sincerely hope Ferriscan is available in Pakistan.

Shaukat Khanum Memorial Cancer Hospital / Research centre and Aga Khan Hospital are one of the biggest names in Pakistan. Funding is not much of a problem for them either.

Sylvia, I encourage you to contact them.

Thanks.
Regards.

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Offline Sylvia

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    • FerriScan: Non-invasive measurement of liver iron concentration
Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #33 on: July 01, 2008, 06:25:49 AM »
Hi Canadian Family and everyone,

Thanks for the info. Yes, I have sent out emails to those 3 haematologists Umair gave me. Well, at least I know 1 out of 3 read my email. (I track my emails so I know if it has been read or not).

I can't "chase" them too aggressively as this might put them off and refuse contact with me or worst, if they delete my email without reading. I will follow up with them in a few days and then weeks....the process can be slow (and painful for some!)

I sincerely ask for all of your patience and if any of you have new contacts, please forward them to me so that I can work on them. I would greatly appreciate an email address to be attached with the contact as email contact is the first step taken in our introduction.

Many thanks for all your supports and I will keep all of you posted on the outcomes.

Sylvia
FerriScan - Be better informed

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Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #34 on: July 01, 2008, 08:49:44 AM »
Thanks,

We really appreciate all your efforts to make Thalassemia more easily manageable and less painful for all Thalassemics.
:stars
اَسّلامُ علیکم Peace be Upon you
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Offline nice friend

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Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #35 on: July 01, 2008, 01:30:50 PM »
Hi sylvia :
its nice to hear that u r  making   efforts to introduce Ferriscan here in Pakistan...
and  facilitate thals of my country .....
secondly info@thalassaemia.org.pk here is the e-mail adress of the Thalasssaemia Society of Pakistan.
Dr.joveria manan is the president of above mentioned society .... u can also contact to her on the phone .... here is complete contact details ........

Head Office:
Thalassaemia Society of Pakistan
146/1 Shadman Colony, Jail Road, Lahore.
Tel: 092-42-7573911 / 7596589
Fax: 092-42-7573911

email: info@thalassaemia.org.pk
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Sylvia

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    • FerriScan: Non-invasive measurement of liver iron concentration
FerriScan in Ontario, Canada
« Reply #36 on: July 29, 2008, 08:13:25 AM »
Hello to all

Attention All Ontario Residents

I'm pleased to inform that FerriScan has been approved and funded by OHIP. Dr Melanie Kirby-Allen & Dr Suzan Williams from the Sick Kids Hospital have submitted funding application on behalf of their patients. We have received the approval from Ontario Ministry of Health and the approved patients would have their FerriScan analyses paid for by OHIP.

Please note that this funding submission must be put forward by the physicians.

For more details, please refer to the Ontario Ministry of Health weblink below:
http://www.health.gov.on.ca/english/public/program/ohip/outofcountry/prior_approval.html
http://www.health.gov.on.ca/english/providers/program/ohip/outofcountry/phys_outofcountry.html

You may also want to highlight this to your treating physician so that they are aware of the funding availability. Please note that all funding is subject to the Ministry approval. Submission of a prior approval application does not guarantee approval of the requested service(s). Individual patient must be approved before the FerriScan service is rendered.
FerriScan - Be better informed

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Offline Sylvia

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Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #37 on: August 15, 2008, 05:35:03 AM »
Attention all Adult Patients in Toronto

After many months of liaising, I am pleased to inform that FerriScan is now setup at Toronto General Hospital.

Toronto General Hospital
Thalassemia / Sickle Cell Program

200 Elizabeth Street
Norman Urquhart Wing
2nd Floor, Room 208
Toronto, ON M5G 1E2

Tel: (416) 340 4882

Please speak with your treating physician or contact the Hospital's Thalassaemia/Sickle Cell Program for more information.
FerriScan - Be better informed

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Offline nice friend

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Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #38 on: August 15, 2008, 02:35:31 PM »
Hi Miss Sylivia :
did you find sucess to make the contact to any official of  Aga khan ( pakistan ) or to any official of thalassemia society of pakistan ????.....
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Sylvia

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    • FerriScan: Non-invasive measurement of liver iron concentration
Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #39 on: August 18, 2008, 02:38:20 AM »
Hello nice friend,

No, I didn't have any results from my emails to Aga Khan. I will keep trying. Our company would be attending the TIF Conference in Singapore in October. Hopefully, we get to meet some of the Pakistani physicians at the conference.

I don't seem to get any good results from emailing physicians in the Middle East regions. Physicians don't reply to email. 1) They don't have regular assess to emails or 2) They are not comfortable exchanging information over email or 3) They don't reply emails to those whom they do not know.

I hope that our presence at the conference would help physicians to understand what we do and how we could work with them.

I am not giving up on this regions yet. They are still on my working list and hopefully, we get to see some results after the conference.
FerriScan - Be better informed

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Offline nice friend

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Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #40 on: August 18, 2008, 03:09:31 AM »
Quote
I am not giving up on this regions yet. They are still on my working list and hopefully, we get to see some results after the conference

hahaha.... its nice to hear that .... keep trying .... best of luck :thumbup .... yeah conference is the best idea to meet and convince people about it ...but.... you have to cut down the price  ... otherwise there is 80% chance of loosing this region ...  lets see wat happen ..
Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Sylvia

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    • FerriScan: Non-invasive measurement of liver iron concentration
Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #41 on: September 11, 2008, 08:21:44 AM »
ATTN All New Zealand Residents

Please be informed that FerriScan is fully reimbursed in New Zealand by the District Health Boards and most private insurers.

Kindly speak to your treating clinicians with regards to having a FerriScan. Please also share this information with your Thalassaemia clinics and local networks.

Feel free to contact me should you need any further information and clarification.

Thank you.

Kind regards
Sylvia
« Last Edit: September 11, 2008, 08:29:37 AM by sgoh »
FerriScan - Be better informed

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Offline Andy Battaglia

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Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #42 on: September 12, 2008, 02:05:55 AM »
Sylvia,

Are there any plans to bring Ferriscan to Delhi, India?
Andy

All we are saying is give thals a chance.

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Offline Sylvia

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Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #43 on: September 12, 2008, 02:27:16 AM »
Hi Andy

Yes, we definitely have plans to setup FerriScan in Delhi. I had a previous discussion with Vikas (a member on the other thal forum) and we had even put forward a proposal to the thal society. He had advised that the society's secretary would get in touch with us, however, no reply so far. Good news is that Vikas is attending the conference in Singapore and hopefully we get a chance to catch up with him and any of the society's committee.

I will keep you posted on the outcomes. If you have a contact in Delhi, you may pass it on to me to contact.
FerriScan - Be better informed

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Offline sahil

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Re: FerriScan : Non-invasive measurement of liver iron concentration
« Reply #44 on: October 12, 2008, 05:24:58 PM »
Is T2* and FerriScan the same?
My formula for living is quite simple. I get up in the morning and I go to bed at night. In between, I occupy myself as best I can.

 

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