Having a laugh at myself

That is what we need Kathy - courage to bring about change.   You are so right, just because ignorance exists about thal and sickle, it doesn't mean we should allow it to continue.  I admire your strength my friend, and your determination to bring about change.  

Certainly, these doctors must learn to treat the 'whole person' and they should treat us with dignity.  A patients psychological and emotional health is just as important as their physical health.  Some doctors are wonderful, like the one who is now treating you - and others are like the one who mistreated you and myself.  I also think that it is wrong for doctors to not take the time to explain things to patients and their families.  Doctors should address our concerns and take into account our wishes.  You are right Kathy, things need to change and I hope that as a group we can influence that positive change in the way that thal/sickle cell patients are treated. 

In the meantime,  I am going to go ask that doctor if his mother knew when she was carrying him that he did not have a human brain . 

Sharmin 

Australia!!i am waiting to watch this one,hugh jackman and nicole kidman 

Zaini,

You're hilarious  

If there were a registry for human brains - I would like to put a few doctors and nurses on the list.... I'm sure we've met all met our share of ignorant "medical professional".   Thank god for the good ones!!! 

In the past year I have taken little A to visit a doctor for a simple cold and cough.  When I told him about the thalssemia, he asked me "Did you know before having him about the risk?" , I told him yes.  After this he shook his head and gave me darting and angry looks.  To be honest, before my son was born I was told that there was some risk but several doctors told me that the risks were next to nothing and that I should leave it alone because I would do more harm to myself worrying and researching duirng my pregnancy.  Of course I would not cause my child harm on purpose, or wish this disease on him.  I was hurt, because he was acting as though my son never should have existed.  In the end, I let the doctor assess my son - because that is why I was there.  I politely thanked him for his help and feeling sorry for his ignorance and closed mindedness I took my son home. 

This summer, little A decided to tell an extended family member about his thalassemia.  She happens to be a nurse so we thought she would handle it well.  Instead she looked at my son - then she pointed at my husband and myself and began saying - "This is your fault -both of you - look what you have done to him!!"  My son looked at her in shock and when she left he looked at us, wondering what she meant.  It took a lot of reassuring to help him understand that he is no accident and how fortunate we are to have him. 
Again, we are going to come accross people like this all of the time all we can do is feel sorry for these type of people

OR

You can put them on the registry for brain transplants!!!   


Sharmin

What annoys me the most is who the hell are these people to determine whose fault was it?they don't know what circumstances were,plus if parents are happy to have this child,who are they to tell the other wise  .

Zaini.

I want to watch the movie as well  

What annoys me the most is who the hell are these people to determine whose fault was it?they don't know what circumstances were,plus if parents are happy to have this child,who are they to tell the other wise 

Can you imagine being a 10 year old - and being told twice within a few months that you should never have existed?  These words are very very hurtful and it is unbelieveable that they sometimes come from doctors and nurses.  I could not say anything at the time because my son was with me and I could not predict what the next words would be and if they would cause  my son more harm.  I do think that if I were alone it was my duty to say something so that other people would not experience what we did. 

It is a good thing that we have a place to vent  

Sharmin

Can you imagine being a 10 year old - and being told twice within a few months that you should never have existed?  These words are very very hurtful and it is unbelieveable that they sometimes come from doctors and nurses.

well i never have eperienced or faced the situation like this ... all the docs i met in my life if they want to say somthing that is hard for me they prefered  and sent me out ( by sayin ,you are feeling bored by sitting to a long time here??? .. you must walk a little bit ... and then rang the bell and told the staff to take him (me) to thhe play area  :innocent smiley ) ....  when i was in very critical and feeling a litle consiousness , a doctor who was running beside my strature continously answering my question and saying ,, "tujhay kuch nahi hoga beta" (nothing bad will happen to you son ) .. .hhehheeh ..... almost 95% of doctors i met were to nice sincere and kind hearted , i m very lucky na ??... yeh i m ...
Another Fact ...
soo i must say that Pakistani Doctors are very kind by behavior and most of girls and boys aimed to be a doctor in their childhood  bcoze they want to serve the nation .. i hope zaini will explain this fact...

umair

Hi Sharmin,

yes  indeed
It is a good thing that we have a place to vent   

Being able to voice ones' opinions and to be undestood ,gives an individual emotional power within,To often people whom suffer with thal or other illness have no voice

This is why the forum like this one is so important ,it a place where, we all can Vent our feelings in regard to the care and treatment recieved in a  safe manner without repercussion.
Emotional stability is important for any one to be able to manage thier illness,
When I mentioned "a soft place to fall" I meant a place where everyone feel listen to and accepted without judgement and prejudice,

This is why I'm so proud of this forum  We are a team and we all try to achieve this goal.

Thank-you to everyone and let us continue to move forward.

It is not a coincedence that no matter how far or how incognito or how little we share we are all valuable because we are all here and we all listen or read from each other
I hope I make sense
 Kathy

Just cross my mind and I started to laugh


I would like to think this forum  to be like the grandma or grandpa that is so "bias" towards thier grandchildren. They love them so much that in thier eyes the grandchildren can do no wrong .
something to laugh about.

Police knocks on the door.
Grandma opens the door"hello officer"

Police,  Mrs smith your grandson was driving without a licence

Grandma, excuse me officer , you are wrong .my grandson is only a little boy and he does no wrong

Police   madame he is 30yrs old ,he had a banned on his liscence because he was, drinking and driving.
Grandma  but this is my little boy, are you certain    it was him .Because I know it couldn't be him

So they continue to argue
 untill the police had to arrest the old lady  too.


Kathy