A GREAT BIG THANK YOU TO ALL THAL PARENTS

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Offline Katerina_Mall

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A GREAT BIG THANK YOU TO ALL THAL PARENTS
« on: March 30, 2013, 09:08:01 AM »
            
A GREAT BIG THANK YOU TO ALL MOMMY'S AND DADDY'S
I know that it hurts you to see your baby in and out of hospitals, i know it hurts you to see that your baby's life depends on needles and someone's blood, i know that sometimes you cry when im not around to see you, i know that behind your every smile inside your heartbroken,i know that maybe sometimes you feel guilty,or ask Why me? or why my baby?? what did i ever do?? i also know that sometimes you feel that noone understands you or feels your pain,sometimes you might blaim eachother,sometimes mommy you leave daddy out of things and you give all your time to me,sometimes daddy you might feel that mommy dont love you,maybe sometimes you get angry with me for taking your time you had with her,i know its hard,as a baby i dont understand much, i might cry and look at you for help ,its because im a baby and i do not understand ...as a teenager, i might give you a hard time, im trying to understand...and now im asking why me? what did i ever do?? i might even get angry at you,sometimes i wont do my therapy as i should...i might not want to take medicine,its because i feel healthy and i dont see any diffrence between me and my best friend so why must i have to be so careful in everything and have to put desferal every night?? i feel fine, i look fine..
im sorry for that period of my life but like i said im TRYING to understand....now....as im growing older...and i totaly understand how important it is to look after myself ...i might fall inlove....be heartbroken many times....study....work.....might even want to get married and start my own family, mommy...daddy at this period of my life i need you to trust me and let me spread my wings, i know its hard because you might me scared,the fear of losing me in anyway scares you, but remember all i have is a blood disorder, and that i undrstand and i can take care of myself doesnt mean i dont need you or i dont love you, mom and dad you two will always be my hero ....YOU two made me the person i am today,a wonderful and caring,loving,respectful,responcible person, with many friends from around the world that have a hidden treasure just like we have mom and dad...and i THANK YOU for ALWAYS being there no matter what Thank you for making me and loving me I LOVE YOU BOTH !! MY HERO'S!!!!!!

just a little something tou all you parents....

love Katerina
« Last Edit: March 24, 2015, 12:08:06 PM by Katerina_Mall »

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Offline Cari

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Re: A GREAT BIG THANK YOU
« Reply #1 on: March 31, 2013, 03:25:17 AM »
 :hugfriend

Thank u. Very sweet words...definitely appreciated.

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Offline Katerina_Mall

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Re: A GREAT BIG THANK YOU
« Reply #2 on: March 31, 2013, 03:34:08 PM »
 :hugfriend


you are welcome :)

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Offline Sharmin

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Re: A GREAT BIG THANK YOU
« Reply #3 on: April 01, 2013, 02:55:04 AM »
Katerina,

Your words made me cry - so few can understand what parents of thal's feel..

Sharmin
 :hugfriend :hugfriend :hugfriend
Sharmin

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Offline ANI

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Re: A GREAT BIG THANK YOU
« Reply #4 on: April 02, 2013, 05:39:23 PM »
katerina
You have written in  a way that reciprocates the voice of each and every paent and their child. Really you made us feel like crying..
Anis father

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Offline Katerina_Mall

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Re: A GREAT BIG THANK YOU
« Reply #5 on: April 11, 2013, 06:26:48 PM »
Thank you for ur lovley replies to my post...

im happy to see that i can feel how my parents feel and how all parents feel with a child of thal
you see my mom and dad got married  (my mom was 16 and my dad 25) when i came along i was diagnosed at 6 months old with thal and my mom was 17...and all her attention and love  was towards me...  its like she lost her world under her feet  , she was totatly lost in 1980 (when i was born) encyclopedias then said that childrens born with thal only lived till the age of 3....  so that was real hard for my parents .... my mom never stopped searching about thal ... so yes my dad felt alittle left out... because i got all the attention and love..my mom gave me all her soul....my dad in the other hand had to bring the money home...someone had to pay the bills...so he in his own way got caught up with work and left the other part to my mom.....so instead of my issue bringing them stronger together...it spread them apart.....for many years....after 11 yrs they had a 2nd baby my brother (non thal)  whom i love more than anything ....(my mom was scared to have a second baby earlier) at the time Dr Lucareli was in the spotlite with bone marrow transplant....to be honest at the age 0f 13 i didnt want to do the transplant...i didnt want my brother to go through any needle priking....or any hospital time, u see im use to it...i didnt want him going through anything even if it was for my own good...to cut a long story short...my parents divorsed...i dont blame anyone of them...i understand both parents... thats why in my thank you post i try to make fathers understand...and im trying to apologise for taking moms love....and attention....being a parent is a real hard job especialy when a baby comes with no instruction guide especialy when it has a blood disorder or then again any health problem....we all make mistakes....we are only human....im just trying to let all parents know that we love you no matter what..and my advise is  try and understand one another and try and become stronger through this tide of ur life....the begining is difficult..the unknown ..the scare of loseing a child...but dont forget eachother... 2 people is better thaqn one fighting....in any tide life brings you....love eachother and understand eachother....thats all...

 

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